Early Voting Begins
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This week, Trump administration officials announced their latest efforts to trim what they identified as duplicative and ineligible enrollees from government health programs. They tied the efforts to the administrationâs broader crackdown on waste, fraud, and abuse â just as some states are opening polling stations for early voting.
The outcome of the midterm elections is expected to affect how and whether Congress addresses several healthcare issues during the lame-duck session, not the least of which is government spending. Plus, Health and Human Services Secretary Robert F. Kennedy Jr. unveiled a new initiative to identify vaccine injuries, complete with a ribbon-cutting ceremony at the National Institutes of Health.
This weekâs panelists are Mary Agnes Carey of Ńîšóĺú´ŤĂ˝Ňîl Health News, Joanne Kenen of the Johns Hopkins Bloomberg School of Public Health, Sandhya Raman of Bloomberg Law, and Paige Winfield Cunningham of The Washington Sun.
Panelists
Among the takeaways from this weekâs episode:
- Federal health officials this week pointed to their efforts to cut Affordable Care Act plan subsidies from people who were dead or found to have duplicate coverage under government health programs. While they were careful to say that these cases were not fraud, they tied their housekeeping activities to the Trump administrationâs broader crackdown on waste, fraud, and abuse â and made that point just as some states are beginning early voting.
- The outcome of the midterm elections is expected to shape how Congress spends its time during the coming lame-duck session, with benefits or repercussions for health policy. Should the Democrats win control of one or both chambers, for instance, the partyâs leaders could push to hold off on tackling government spending until they have more clout next year. Among the issues on the table are changes to the No Surprises Act, which has shielded patients from many bills but also has come under criticism for problems with the arbitration system it created.
- And Kennedy is pursuing a new initiative on vaccine injuries, opening a designated clinic at the NIH. The federal health department has also proposed reimbursing medical professionals for reporting vaccine-related injuries.
Also this week, Ńîšóĺú´ŤĂ˝Ňîl Health Newsâ Julie Rovner talks with Dan Weissmann, host of the healthcare podcast An Arm and a Leg, about the new and even more confusing landscape for Medicare enrollees as open enrollment begins.
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Subscribe to Ńîšóĺú´ŤĂ˝Ňîl Health News' free Morning Briefing.
Plus, for âextra creditâ the panelists suggest health policy stories they read this week that they think you should read, too:âŻ
Mary Agnes Carey: Ńîšóĺú´ŤĂ˝Ňîl Health Newsâ âPeople Say These Peptides Hurt Them. Their Stories Are Muffled in MAHAâs Push for Medical Freedom,â by Amy Maxmen.
Sandhya Raman: Statâs â,â by Andrew Joseph.
Paige Winfield Cunningham: Ńîšóĺú´ŤĂ˝Ňîl Health Newsâ âAI, Tech Leaders Are Lobbying Trump Health Officials in a Government-Run Chat Room,â by Amanda Seitz, Maia Rosenfeld, and Darius Tahir.
Joanne Kenen: On CBS Newsâ Face the Nation, host Margaret Brennanâs interview with Shyam Sankar, chief technology officer at Palantir. ()
Also mentioned in this weekâs podcast:
- Reutersâ â,â by Andy Sullivan, Helen Coster, Ahmed Aboulenein, and Tim McLaughlin.
click to open the transcript Transcript: Early Voting Begins
[Editorâs note: This transcript was generated using transcription software. It has been edited for style and clarity.]
Mary Agnes Carey: Hello from Ńîšóĺú´ŤĂ˝Ňîl Health News and WAMU Public Radio in Washington, D.C. Welcome to What the Health? ąőâm Mary Agnes Carey, managing editor of Ńîšóĺú´ŤĂ˝Ňîl Health News, filling in for Julie Rovner this week. As always, ąőâm joined by some of the best and smartest health reporters covering Washington. Weâre taping this week on Thursday, Oct. 15, at 10 a.m. As always, news happens fast and things might have changed by the time you hear this. So, here we go.
Today weâre joined via videoconference by Paige Winfield Cunningham of The Washington Sun.
Paige Winfield Cunningham: Hi, Mary Agnes. Great to be with you.
Carey: Sandhya Raman of Bloomberg Law.
Sandhya Raman: Good morning.
Carey: And Joanne Kenan of the Johns Hopkins School of Public Health.
Joanne Kenen: Hi, everyone.
Carey: Later in this episode, weâll have Julieâs interview with Dan Weissmann, host of our sister podcast An Arm and a Leg, about the new and even more confusing Medicare landscape as the 2026 open enrollment begins. But first, this weekâs news.
Yesterday, the Centers for Medicare & Medicaid Services announced it had identified 189,000 people receiving Affordable Care Act plan subsidies who were also enrolled in a second government health program or are dead. CMS officials said that eliminating that duplication would save taxpayers approximately $1.5 billion over the next year. Wednesdayâs announcement follows the administrationâs move last month to remove 760,000 people from ACA coverage, citing alleged fraud. The cost of healthcare is a top issue for voters in the upcoming midterm elections, and the Trump administration keeps highlighting its efforts to combat waste, fraud, and abuse. How do these two announcements help Republicans in the midterms, especially as early voting is beginning in some states?
Cunningham: Well, I was at the press conference yesterday where they announced this, and itâs kind of interesting that theyâre trying to fit this announcement into their larger effort to combat fraud, because officials actually said yesterday that this doesnât necessarily reflect fraud. So what they were announcing yesterday is basically they were looking for people who had often moved from one state to another and then didnât cancel their ACA plan or Medicaid coverage, and so now theyâre enrolled in both. And so this is more of an issue of just kind of cleaning up the rolls, making sure that people are only on one plan instead of two. And so I thought they did a pretty good job of explaining yesterday what they were doing there.
But it was interesting because, as you note, they have this larger anti-fraud effort. It seems like every time ąőâm tuning in to what [CMS Administrator Mehmet] Oz is doing, heâs talking about fraud. And theyâve partnered with DOJ [the Justice Department] and other agencies to go after fraud in all manner of areas. And I would say, some of the stuff theyâre doing on Medicaid is quite unprecedented, right? Theyâve deferred huge sums from California and Minnesota. Theyâre alleging massive fraud. The states say that theyâve provided no evidence of fraud. So thereâs a lot of questions there. But I will say on the ACA efforts, when I talk to career staff inside CMS, they say, You know, we did need to do a lot of cleaning up of the rolls in ACA. And there has been an ongoing issue of agent broker fraud, and there are incentives for agents to enroll people without using Social Security numbers because they get commissions every time they do. So I think thatâs a real and important effort.
But I do think itâs interesting theyâre trying to kind of roll it all together in this big anti-fraud messaging ahead of the midterms. And I think especially [Vice President] JD Vance, for example, talking about this in starkly political terms, like he will go out there and say blatantly Republicans want to get rid of fraud and Democrats want fraud, which is a ridiculous thing to say because you talk to anybody in the, you talk to any state, red or blue, and they say obviously we donât want fraud. Itâs more of a question of how many resources you put toward trying to get rid of fraud. I donât have a great sense of how much this is resonating with the public, but they certainly have been kind of tying it to this message of: These are taxpayer dollars that are being misused, and weâre going to right all of these wrongs.
Kenen: Thereâs a couple of issues. The crooked brokers is a problem, has been around for a while, and Democratic and Republican administrations have announced theyâre cracking down and so forth. And we also know thereâs provider fraud, right? Every few years thereâs a spectacular bust of some home health agency somewhere, Florida, Brooklyn, wherever â itâs in red states and blue. But the way itâs talked about, itâs often made to sound like itâs the recipients rather than the brokers or the providers. ąőâm not saying thereâs no individual in the entire United States who hasnât committed some kind of fraud. Obviously, we have crooks among us, but the healthcare fraud is largely not the recipients. But by talking about it, they make it sound like the recipients are bad guys. Not always. Iâve seen CMS releases that have been very precise that this is brokers or something. Theyâve been accurate. But the tone, the way they talk about people on Medicaid, the way they talk about work requirements, the way they talk about the ACA, itâs like lazy, fraudulent people who donât deserve things. So thatâs sort of the political thing. The fact that thereâs healthcare fraud â thereâs always been healthcare fraud, unfortunately, because I donât know anybody whoâs actually in favor of it except the people committing fraud.
Winfield Cunningham: Yeah, I think on the ACA, it is true. Weâre coming off of the pandemic, where a lot of these anti-fraud efforts, particularly on ACA, were paused, and obviously people were allowed to stay on Medicaid longer, so that was a thing. And they keep referencing, they keep trying to blame, the Biden administration for the rolls of the ACA and Medicaid kind of expanding. But youâre right, Joanne. On the Medicaid piece, every state has a fraud control unit that has been operating for a long time, and sometimes when they try to kind of trumpet their efforts, theyâre also rolling in a lot of previous efforts to combat fraud that happened under previous administrations.
Carey: But from the election viewpoint, how does this square with a voter? Right? If you are struggling to afford your healthcare premium, or if you were one of those folks that got that enhanced ACA subsidy thatâs now gone, or youâre paying more for your drugs at the pharmacy counter, does that really comfort you that the Trump administration is focusing on waste, fraud, and abuse,-a problem thatâs been with us, as we are all noting here, for a while?
Winfield Cunningham: I do think people respond to tangible things. Which I think the administration has that sense, which is why you saw them announce that theyâre sending these $500 checks to itâs like around a million ACA enrollees, and the checks are mostly going to, well, theyâre all going to states that rely on healthcare.gov. And most of the states that have really competitive Senate races this year, are voters in those states, are getting those checks. So I donât know. I donât ever have a very good political sense, so I canât say. But maybe if somebody gets a $500 check in the mail, they maybe are feeling better about the administration. But itâs definitely a patch on the existing problem of just marketplace plans being too expensive if youâre not heavily subsidized.
Kenen: If you lost your health subsidies and youâre now either uninsured or paying a lot in the private market for a plan that might not be very good, I donât see that health $500 check is going to make you feel whole. Itâs like you lost something worth thousands and theyâre giving you hundreds. And ąőâm not sure if this $500 is taxable or not. I donât know if anyone, if any of you know that Iâd be interested.
Carey: Oh, I do not know that.
Kenen: I donât know, but itâs not that much money. I donât think that the people who are mad about the expired subsidies are going to suddenly decide they donât matter because they got 500 bucks, right? And in fact, if you go on what Mary Agnes said, this is more in the, the red states are more reliant on â fewer of them are running their own exchanges. I donât think the $500 check is going to make a big difference in terms of how people vote. I donât think most people whoâve lost insurance could be, if you were going to vote against the Republicans because of that, I donât think 500 bucks changes it.
The other fraud conversation is the president himself, whoâs constantly saying that thereâs fraudulent elections, that the Democrats cheat, and so on and so forth. That the media lies. So thereâs a separate fraud conversation. I think that the healthcare conversation about fraud may reinforce that a little bit, but I donât know that we know that people make a connection to the political stolen-election dialogue and the healthcare fraud dialogue. I think that they are sort of creating an impression that there are a lot of people who are getting federally subsidized healthcare who donât deserve it. But I think that translates into support for entitlements, or what used to be entitlements, or now sort of modified entitlements for some. But I donât know if it really changes your view of your political affiliation and how youâre going to vote.
Winfield Cunningham: Well, and if you think about just the numbers, I remember talking to ACA enrollees at the end of last year who were going to lose all of their subsidies. Youâre talking about your cost going from a $500-a-month premium to $1,500 a month or $2,000 a month. I talked to a lot of people that were looking at that. So $500 is just a patch. Maybe it helps fill in the gap for one month, but you have 11 other months you have to cover these higher premiums.
Carey: Letâs shift to what happens after the elections. Congress comes back for a lame-duck session on Nov. 9, and with the midterm campaigns behind them, lawmakers might be willing to tackle politically sensitive issues that both parties prefer to defer until after the elections. But depending on who wins and by what margin, and if, itâs predicted, Democrats take at least one chamber, compromise may not be high on the agenda. Must-pass legislation includes funding the government beyond Dec. 11, when the current continuing resolution expires. Healthcare items could certainly hitch a ride on that measure. Lawmakers from key healthcare committees have floated fixes to the No Surprises Act. Thatâs legislation that protects consumers from high out-of-pocket costs if they seek emergency care from a provider thatâs not in their current insurance network. The lawâs arbitration system has come under fire on several fronts â more claims than expected, and some payouts for physicians that insurers have said are sky high and refuse to pay. Rep. Frank Pallone of New Jersey â heâs the top Democrat on the House Energy and Commerce Committee â has proposed eliminating arbitration and instead paying doctors at median in-network rates. Rep. Greg Murphy, a North Carolina Republican who is a physician and sits on the House Ways and Means Committee, he expects that panel to have legislation on the issue. And outgoing Senate Health, Education, Labor, and Pensions Committee Chairman Bill Cassidy, a Louisiana Republican, has said that he hopes to introduce legislation as well. Does all this attention to the No Surprises Act mean weâre going to see movement on this? If so, what might that legislation look like?
Raman: I think it goes back to what you said before, which is really the midterms are going to shape so much of this, Depending on that outcome, if Republicans keep control of both chambers, the air in the room, I think, is really going to push towards getting appropriations done, or done quicker, so they can move on to new things next year, whereas if Democrats get one or more chamber, theyâre going to want to push it so that they can have more buy-in doing it next year. And I think so much of that, what would get done regardless, is going to ride on that. There hasnât been a huge appetite in general to get a lot of these little healthcare things done. And when we did the No Surprises Act before, it took a while. This was multiple years of fine-tuning, trying to get things done. And so rolling, I think, something out really quickly was going to be hard, especially when we have limited time in an election year to move that forward.
Kenen: I think another thing to look at will be [Sen.] Susan Collins [of Maine], not so much on No Surprises but obviously on appropriations, whether she wins or loses, either way. If she wins, sheâs insulated for six years. Sheâs sort of free to be more independent. Sheâs a moderate Republican who speaks a lot, again, of her disagreement with [President Donald] Trump but hasnât been the pivotal vote in all that many situations. The issue that really is relevant to our listeners is she has been a leader in fighting for the NIH [National Institutes of Health] and also against the administrationâs efforts to have political appointees oversee, decide, what weâre spending our scientific grants on. Sheâs fought it on, successfully, twice at least, but those have been short-term achievements. Can she get something more permanent in whatever goes through Approps in lame-duck?
If she loses, she has nothing to lose. She can be as independent as she wants. If she wins, sheâs empowered. So that whole issue of funding is going to be very interesting to watch. I think something is going to happen in the foreseeable future on surprise bills. It was bipartisan. People like it â not everybody, but generally consumers like it. Problems have arisen as often things happen. People have figured out how to find the loopholes, game the system. I think something will get fixed. Whether it gets fixed in December, ąőâm not sure. It may well go into next year. Things donât happen all that fast in Congress. You could do a quick deal and get it off the table for everybody, because thereâs a certain amount of agreement on the approach, or it could simmer the way everything in Congress tends to simmer. But ąőâm sort of really watching what happens to Collins, whether sheâs got another month in the Senate or whether sheâs got six more years in the Senate.
Carey: Well, sheâs been, to your point, Joanne, Collins has been working with [Sen.] Patty Murray [of Washington], whoâs the ranking Democrat on Approps, to push back against exactly what youâre talking about, those efforts at the White House to have more political involvement in medical grantmaking. Other senators have also expressed concerns, and maybe theyâll join these efforts. But what could happen in lame duck, if anything, on these Medicare extenders? The stuff we hear about every year, things on price transparency, or for Medicare extenders, community health centers, lab services, hospital and physician payments? Would that be kind of an easy thing, easier than trying to fix the No Surprises Act or to come up with comprehensive legislation pushing back on the grantmaking interference from the White House? Any thoughts on that?
Kenen: Extenders are by definition extending something, more or less, that already exists. So itâs not certain. Things get complicated, But a lot of the extenders, they get tied up and delayed as part of a pawn in other fights. But the end of the day, they usually eventually go through. Sandhya and Paige are both on the Hill more than I am, so they can tell me if thatâs no longer the case, but theyâre notâ
Winfield Cunningham: I donât go to the Hill, Joanne. Everythingâs happening at the agency. I donât go to the Hill.
Kenen: Right. So extenders are on the Hill, right? So by definition, they get extended.
Carey: Thatâs exactly right, yeah.
Kenen: Theyâre sort of on an assembly line. People make speeches. People hold them up because they want something else. Theyâre bargaining chips. Theyâre lower-profile. They get pushed aside, blah blah blah blah blah. Congress has endless ways of postponing and delaying and arguing. Theyâre very good at all that. But at the end of the day, extenders eventually get extended. Whereas there are interest groups lined up around something, the providers vs. the insurance industry over how youâre going to address surprise bills. Clearly, there were unintended consequences. The legislation was popular and bipartisan, but we can see it needs to be tightened up. I think you would find bipartisan agreement on tightening it up. You might not see Republicans rushing to embrace a Democratic solution before Thanksgiving or whatever. But I think theyâre different animals. Theyâre different animals.
Raman: Exactly that, the kicking the can down the line for extenders, itâs the same conversation every year. I think the other issue with surprise billing is that half of these conversations that we have are just, even if they agree on the policy, them trying to figure out offsets and just what happens there. And that becomes contentious at times, just trying to hammer all of that out, find something bipartisan, even when the underlying policy is something that folks agree on wanting to get done. So, just with the limited time, I think itâll take a little bit longer than just the next couple months.
Carey: Well, weâll all be keeping an eye on that. So now weâre going to take a quick break, and weâll be right back.
Letâs shift from Capitol Hill to the Department of Health and Human Services, where Secretary Robert F. Kennedy Jr. has opened a new National Institutes of Health clinic that focuses on patients experiencing health problems following vaccination. HHS has also proposed reimbursing physicians for reporting suspected vaccine-related injuries and urges better electronic health records tracking of these events. Sandhya, I know that , and can you tell us a bit, start off our conversation here, on why the agency and the secretary took these steps? Donât doctors already report these issues?
Raman: Yes, this is something that is reported. The secretary and others feel that it is vastly underreported, that there need to be other levers in place to make sure that itâs reported to the extent that theyâre seeing. And so, this event that they unveiled this all last week was kind of interesting in that it was not something the press was invited to. They didnât do a big announcement when it happened on Monday. It took several days, and then they put out some pieces related to this happening. They did a ribbon-cutting for this vaccine injury clinic. The clinic is not open yet. This is just kind of the start of this process. But the reimbursement piece is interesting.
So it stems from a proposed rule, an annual Medicare physician payment rule that came out earlier this year, should be expected to be finalized in November. And under the language that we have right now, it would reimburse physicians and other providers, physiciansâ assistants, nurse practitioners, etc., for tending to more severe vaccine-adverse reactions, so maybe not something like mild swelling of the arm or something thatâs more common. They would create a new code under the Medicare system for that to allow providers to bill for diagnosing that and reporting it to the vaccine adverse effects system. And there have been some concerns from some of the medical professional groups â we have the Infectious Diseases Society of America, the American Academy of Neurology, American Nurses Association â that kind of have some concerns that this could incentivize certain folks to report more on this, that the system already adequately covers you as a provider reporting these systems and counseling someone for what happens here, and that if it were a really severe reaction, they would use some other kind of billing code because thereâd be multiple visits, that kind of thing. So, I guess the next step to watch would be whether or not this gets finalized as is next month, to be put in place next year. But thatâs what weâre watching on the reimbursement piece.
Kenen: One of the issues with defenders of vaccines, nobody says thereâs never a side effect or an injury. Nobody whoâs on the pro-vax side says nothing ever goes wrong. They do say that most of the side effects are mild, like Sandhya just said, a sore arm or something like that. But they also acknowledge there are rare cases in which something does go wrong. So the current reporting system is anybody could write anything. Some of it is suspected to be made up by people who oppose vaccines to exaggerate the problems. And then thereâs also a problem of what causes something, right? A biostatistician would say causation vs. correlation, right? We donât have to go there. Basically, if I have a vaccine on Monday and I get sick on Tuesday, it doesnât mean the vaccine made me sick, right? So that gets confused, and itâs very, unless the science is done really, really, really well, itâs going to prove what people want it to prove. So the number of people who file a complaint that theyâve been injured is quite high. The number of people who have actually been injured is quite small. Itâs not zero, but much smaller than the anti-vaccination movement says. So sorting: Whoâs doing the science? What does the science look like? What kind of peer review is the science going to have? How transparent are they going to be? What are we going to learn from it? Is it predestined? Is it designed to prove that vaccines cause autism, even though we know it doesnât? Thereâs just a whole lot of questions about this endeavor.
Winfield Cunningham: But I think this underscores how Kennedy just brings in a fundamentally different set of assumptions about this than any other health secretary weâve ever had, which is most medical experts say these supposed injuries are overreported, right? Because as you say, Joanne, people report things and they donât really know if itâs actually related to a vaccine. But Kennedy has been saying for years that these events are underreported, and he has close allies. I know Aaron Siri is one whoâs been pushing him to try to reform the reporting system, so itâs part of this bucket of things heâs trying to kind of do around HHS to change almost the governmentâs posture toward rare vaccine events.
Carey: And thatâs this weekâs news. Now weâll play Julie Rovnerâs interview with Dan Weissmann of An Arm and a Leg podcast, and then weâll come back and do our extra credits.
Julie Rovner: I am pleased to welcome back to the podcast Dan Weissmann, host of our sister podcast about why health costs so much, An Arm and a Leg. Welcome back, Dan.
Dan Weissmann: Julie, thanks so much for having me.
Rovner: So this week is the start of open enrollment for the 70 million Americans on Medicare. Thatâs when people can change their private Medicare Advantage plans if they want to, or their private Medicare drug plans, or go back to one or the other. And you guys have just dropped this great episode about how this year is, well, kind of different. Tell us what people on Medicare can expect. Why is Medicare open enrollment so different from, say, your employerâs open enrollment period? And whatâs new this year?
Weissmann: Oh my gosh. OK, letâs start with the big question: Why is â how is Medicare open enrollment different from your employerâs? And basically â taking a deep breath â Medicare is super complicated. Youâve already mentioned a couple of things. The big distinction with Medicare is that you make a big choice, usually when you turn 65, between what we think of as traditional Medicare run by the U.S. government and Medicare Advantage, which is administered by private insurance companies. Generally, you go one way or the other when you turn 65. If youâre in traditional Medicare, things donât change a whole lot from year to year. You probably have a supplemental plan to cover things that government Medicare doesnât cover. You might hop from one to the other, but theyâre basically different versions of the same thing.
Medicare Advantage is this whole other world where, wherever you live, thereâs a bunch of different carriers usually offering different plans, and then you sort through them. In that way, itâs a little like your employerâs open enrollment, except thereâs nobody like your HR person telling you, These are your choices. Youâre kind of on your own to figure it out. And whatâs different this year is a really big deal. Weâre seeing continuation of a trend that started last year, where for many of the people â you mentioned, 70 million people are on Medicare. The numbers weâre seeing this year are about 3.8 million â so thatâs almost 5% of those folks â are getting letters from the plan theyâve got now, which maybe theyâd want to stick with, saying: Yeah, actually, this plan will not be available next year. Youâve got to find something else. Thatâs a pretty big change.
Rovner: So, Medicare Advantage has always been this sort of interesting swap for people. You can, in exchange for getting extra benefits that Medicare doesnât cover, things like dental and vision and hearing coverage, you have to stay in your Medicare Advantage planâs network, so you canât go to any hospital or any doctor like you can mostly with traditional Medicare. The thing about Medicare Advantage, though, is that you canât go to anybody outside your network. So sometimes people want to go back or they want to change. And what a lot of people donât seem to know is that while you can change every year from one Medicare Advantage plan to another, if you go back to traditional Medicare, with no limits generally on the networks, you might not be able to buy a supplemental plan that helps you with those thousands of dollars in out-of-pocket costs that regular Medicare exposes you to, and premiums and deductibles and copays. How big a shock was this to the people that you talked to?
Weissmann: Well, for this story, I think, just to take a step back for a minute, when people choose Medicare Advantage instead of traditional Medicare, theyâre often looking at a couple things, and one is those extra benefits that you mentioned. And the other is, yeah, traditional Medicare has big limits. Specifically, in addition to vision and teeth and ears, it only covers 80% of the bulk of regular medical care, things that youâre not going into inpatient care for, like seeing your doctor, physical therapy, getting an infusion, even outpatient surgery. All that youâre on the hook for 20% of, which, if anybodyâs seen a medical bill recently, can be a whole heck of a lot more than you could pay on your own. So you would need this supplemental policy to protect you from that. And theyâre expensive. Theyâre not cheap. The average, and it varies depending on the kind of plan you pick and where you live, but, like 200 bucks a month, which is a lot for a lot of people. And youâre also already paying about 200 bucks a month to the government for Medicare, which is also a surprise to a lot of people turning 65.
So those things make Medicare Advantage seem really, really advantageous, because often those plans also tell you, Weâll take care of a lot of, or even all of, that $200 youâd be paying to the government. So for a lot of people whose incomes are kind of limited after they, say, retire, theyâre like, ąőâm going into this. But then people run into the problems with Medicare Advantage, which is everything weâre familiar with from dealing with private insurance companies in our regular life. They can deny you care. They can tell you you can only see their doctors, and they may not have a lot of doctors, and they may be far away, and they may not be very good, depending whatever you see. So people might want to switch back, but itâs a no-back-seat situation in most states, where you canât buy one of those supplemental policies for love or money because they might say, You have preexisting conditions, and we donât have to take you.
Rovner: Right. They only have to take you once when you first go on Medicare.
Weissmann: When you go into Medicare for the first time, they have to take you. In a few states, they have whatâs called guaranteed issue, and they have to take you anytime. But generally, for most of us, yeah, they donât have to. And itâs a kind of pre-Obamacare world where theyâre like: You have preexisting conditions. No, weâre not going to sell you anything. So thatâs a big shock to a lot of people. It was a big shock for me when I first started learning about Medicare. I was like: Really? Thatâs the deal? So, OK, you can switch from one Medicare Advantage plan to another. You could go back to traditional Medicare. You may not have that option. But what weâre seeing this year happened last year. It happened on a slightly smaller scale. But very significant this year, we think itâs about 3.8 million people getting notes their Medicare Advantage plan is ending.
Last year was 3 million, which was a big shocker, and so my colleague Emily Pisacreta talked to a lot of people â people who are in that situation and people who are helping people in that situation, community workers, health insurance brokers, all the rest. And one thing that she learned was that in that case, at least in Minnesota, having your Medicare Advantage plan end gave you a little bit of a get-out-of-jail-free card. You could go back to traditional Medicare and buy a supplement, and they couldnât turn you down. However, what people told us was, for the most part, people didnât feel like they really had the financial option to go back to traditional Medicare, because those supplements were so expensive for them. And as our colleague Julie Appleby has been chronicling, theyâre getting much more expensive year over year.
So that was a surprise to us. It was kind of a big â the big reveal was like: Oh, man, wait. This is bad. Your traditional âyour Medicare Advantage plan could go away, and sometimes in a few cases there were no Medicare Advantage plans available to people in certain counties. But even in the places where there were, again, the people who were in the business of helping people find new plans said: Look, the plans that remained in Medicare Advantage were not as good. They cost you more out-of-pocket. They covered less. The benefits werenât as good. All those things were true, and yet people chose them because the alternative, the monthly out-of-pocket spend just to maintain that supplement and pay the 200 bucks to the feds, was more than they felt like they could afford. So they were stuck. And this seems, to us it seems like a big problem for Medicare. Because if weâre in a situation where Medicare Advantage retreats in a way, and itâs less available, and whatâs there is less good âum, thatâs not good, especially if the majority of people in this situation canât afford anything else. Theyâre stuck with whatever remains.
Rovner: And letâs play a little excerpt of what you found in Minnesota.
Emily Pisacreta: Meanwhile, Kelli Jo Greiner and her colleagues at the stateâs Medicare hotline were scrambling, too.
Kelli Jo Greiner: We had wait times of two hours. Nobody wants to wait for even 10 minutes, let alone two hours.
Pisacreta: She and her team had to improvise.
Greiner: We have staff that donât usually do Medicare counseling. They help with long-term care and other areas, and we even put those folks on the phones to help.
Pisacreta: And she wrangled a weekly spot on Fox 9 in the Twin Cities to answer big questions.
Amy Hockert: Medicare Monday is what weâre calling it. A lot of changes coming in 2026. Kelli Jo, thanks for joining us.
Greiner: Well, thank you. ąőâm glad to be here again.
Hockert: All right. Well, letâs roll âŚ
Pisacreta: Kelli Jo told viewers the most important thing is to be proactive. If you donât do anything, the system will put you into traditional Medicare, but without a Medigap plan. Oh, and by the way, she told them, your drug plan will probably disappear, too, unless you sign up for a new one.
Rovner: So, what do you do if you get a letter telling you that your plan is ending? Or if you just plain need help? There is actually â this is the one bright spot â there is a lot of help available. Right?
Weissmann: There is help available. Yeah. The best thing you can do is go to Google and Google the word âSHIPâ and âMedicareâ and the name of your state. SHIP is a kind of federally backed program. Thereâs one in every state. And itâs an acronym, but the words it stands for are slightly different from state to state, so just use âSHIPâ and âMedicareâ and, in my case, âIllinois,â and you will get a link to essentially a program where you â thereâs a hotline you can call. Thereâs people there who â some of them are volunteers, some of them are staff â and their whole job in life is to walk you through your options for what kind of Medicare you could get. And theyâll know everything about what Medicare Advantage plans are available to you, what supplements cost for you, and theyâll talk through with you your options. I should say, one of the things we found when we talked to people in Minnesota was that those hotlines were jammed last year. But, so try it and do it and donât give up.
The other thing is you can look for a health insurance broker, but thereâs a caveat there, too â a couple of them. One of them is â some brokers are great. We talked to somebody who did all of this, and didnât get paid, but helped all of her clients and dozens more people find plans that could work for them. And the reason she, ąőâm saying she did this for free is because this is another piece of the puzzle in things that are changing. Big carriers like United and Humana are telling brokers theyâre no longer going to pay commissions on sales of Medicare Advantage plans. So this is going to make it harder. The woman we talked to said, yeah, she was getting calls from people who couldnât reach their own brokers because their brokers were no longer doing any of this. They just got out of the business. Thatâs really tough. And when you, if you can find a broker, you want to ask them things like, Do you sell every plan thatâs available in my marketplace? Because you want to make sure that theyâre doing the best they can for you. It is really tough. It is really tough. But those are things you can do.
Rovner: And do it early, because Medicare open enrollment only goes until Dec. 7. So donât wait until Dec. 6 to make that call.
Weissmann: Yes, and so a couple of other pieces of advice that we got. One, if youâre in a Medicare Advantage plan, watch the mail like a hawk. By Oct. 1, youâre supposed to get a notice if this is happening to you, about whether your plan is available or there any changes to it. Donât miss that, because the period to do something about it is limited. And hereâs whatâs going, and just, you should know whatâs going to happen if you donât do anything in this situation, which is you would end up being automatically enrolled in traditional Medicare. But you wouldnât have a supplement, because youâre not signing up for it in this. Youâre not doing anything about it. And in Medicare Advantage plans, drug coverage is generally bundled with the plan that you have, which means your drug coverage is ending, too. You have to sign up for a new one. So that would be bad to end up Jan. 1 not having a drug plan and being on the hook for 20% of anything that happens when you go to the doctors. Do anything you can to avoid it.
And, honestly, go to the local library, call your city council member, call representatives of local government and state government, and ask them for help. They may be aware of resources besides SHIP that can be helpful to you. Emily talked to the folks from a senior federation that covers seven counties north of the Twin Cities. Itâs an unusual group, and they were super dedicated. That exact kind of group doesnât exist everywhere, but if you called your state rep or your city council person, they could tell you, Hey, hereâs somebody who helps people. This is a really tough situation for so many people. Itâs worse than last year. Thereâs more people getting these letters than did last year, and more brokers are being told that theyâre not going to be paid a commission than last year. So start hunting ASAP for any help you can get.
Rovner: Dan Weissmann, thanks so much for doing this. What a great service.
Weissmann: Thanks so much for having me.
Carey: Weâre back, and itâs time for the extra credit segment. Thatâs where we each recognize a story we read this week and we think you should read it, too. Donât worry if you miss it. Weâll post the links in our show notes on your phone or other mobile device. Joanne, why donât you go first this week?
Kenen: OK, this is actually rather than a traditional print story. Margaret Brennan (Face the Nation) did with this CTO, the chief technology officer of Palantir, Shyam Sankar. Much of it was about all the things weâre hearing about, the debates about the future of AI and the existential threats and its effects of altruism, things that are not relevant to us focusing on health. But there was one real zinger that came out, which is that Sankar told Margaret Brennan that people in the AI world are beginning to smoke cigarettes just to prove how confident they are that AI is going to cure lung cancer quickly. As he said, these engineers or software developers, theyâre basically saying, as he said, ąőâm showing you that my chips are all in. and Margaret Brennan said what I would have said, as her comment was: âWhat? That makes no sense.â But there you have it.
Carey: Wow, that is supreme confidence. All right, Sandhya.
Raman: So I picked â my piece is from Stat. Itâs called â,â by her colleague Andrew Joseph. And itâs a really sweet tribute to Helen, who passed away this week from cancer. Sheâs been a long-standing, very influential reporter on the infectious disease beat. Had really early insights into covid. She covered the 2003 SARS outbreak. And sheâs well known and respected throughout folks following healthcare, and even internationally. The WHO [World Health Organization] put out a statement about her passing. And she will be sorely missed.
Carey: No, itâs a beautiful tribute, and thank you for flagging that. Everyone should read that. Paige.
Winfield Cunningham: Yeah, mine is a Ńîšóĺú´ŤĂ˝Ňîl Health news story [âAI, Tech Leaders Are Lobbying Trump Health Officials in a Government-Run Chat Roomâ] by Amanda Seitz, Maia Rosenfeld, and Darius Tahir. And I was really struck by the story. It was just fantastic reporting. And they gained access to thousands of Slack messages and meeting transcripts and video recordings that kind of shed light on how the administration has given tech companies a direct line to government officials as theyâre basically lobbying the government to allow them to bill Medicare for their AI health apps. And instead of doing this through public meetings that anyone can view, it was kind of done behind closed doors through these closed Slack channels. So I thought it was just a really insightful look into kind of that conversation between the administration and the kind of wellness AI tech industry.
Carey: I agree. It was an amazing piece. My extra credit is from my colleague Amy Maxman, titled âPeople Say These Peptides Hurt Them. Their Stories Are Muffled in MAHAâs Push for Medical Freedom.â Amy examines how the lack of data in clinical trials leaves consumers in the dark about peptide safety, their efficacy, and their dangers. Experimental peptides are often sold at longevity, wellness, and so-called performance medicine clinics, even though they havenât been proven safe and effective in clinical trials. If youâre thinking about using peptides, Iâd read this first.
Thatâs this weekâs show. Thanks to our editor, Emmarie Huetteman, and our producer-engineer Francis Ying. A reminder: What the Health? is now available on WAMU platforms, the NPR app, and wherever you get your podcasts, as well as, of course, kffhealthnews.org. Also, as always, you can email us with your comments or questions. Weâre at whatthehealth@kff.org. Or you can find me on X, . Where are you folks these days? Paige?
Winfield Cunningham: ąőâm on X, .
Carey: Sandhya.
Raman: ąőâm and , @SandhyaWrites.
Carey: Joanne.
Kenen: ąőâm mostly and on , @joannekenen.
Carey: Weâll be back in your feed next week. Until then, be healthy.
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