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A Camp for Children With Brain Injuries Zips Ahead, Despite Federal Uncertainty

MILLVILLE, Pa. 鈥 In an open field, arrows whizzed through the humid June air and struck their targets. Campers and counselors cheered.

It was archery hour at . Operations director Drew Meyer watched, a few tears escaping from behind his dark sunglasses.

鈥淭hey will surprise you, like, flat out,鈥 he said of the campers, who have all survived brain injuries. 鈥淭hey鈥檒l come out here, and they鈥檒l shoot for three hours and start hitting the target.鈥

Campers, ranging in age from 10 to 21, have been coming to Camp Cranium in Pennsylvania鈥檚 rural Columbia County since 2008. Some of their brain injuries are so severe that they have to relearn basics, from talking to tying their shoelaces. Some use wheelchairs or crutches. But during a week at camp, they climb rock walls, swim, and whiz down a zip line through the lush forest.

The existence of Camp Cranium, and a handful of others like it, is a response to a decades-long national trend: More people, including children, now survive crises resulting in brain injury than did in the 1980s. The improvements in survival are largely due to seat belt laws and and trauma centers that can treat injuries quickly.

But recently, efforts to track and prevent one type of brain injury, traumatic ones, are in flux after Congress didn鈥檛 renew a and prevention of traumatic brain injuries, and the Trump administration fired hundreds of employees at the Centers for Disease Control and Prevention, including the team tracking traumatic brain injuries, or TBIs.

鈥淏rain injury can happen to anybody,鈥 said , executive director of the . 鈥淭his community deserves more.鈥

A boy in a blue helmet sits in a harness and holds onto a colorful grip on a rock climbing wall.
Lucas Hardy uses a hoist to climb the 30-foot rock wall at Camp Cranium in Millville, Pennsylvania, in June. (Sarah Hofius Hall/WVIA News)

Tracking Brain Injuries

Lucas Hardy, 14, smiled at the encouraging crowd below. In a shady clearing in the woods, he climbed the 30-foot rock wall, aided by a hoist that pulled him out of his wheelchair and helped support his moves. Hardy suffered a traumatic brain injury at age 3, when a tree branch fell on him at a birthday party.

Annually, an estimated 2.8 million Americans experience a TBI 鈥 including about 475,000 children, according to the .

Recent data suggests those are undercounts. In 2018, a CDC team piloted a household survey asking about TBIs in a sample of U.S. children and adults. The results concluding that such injuries, which are often considered 鈥渉idden鈥 because the damage is internal and unseen, are more widespread than hospitalization numbers suggest.

The mass firings at the CDC in early 2025 studying TBI, right before they were expected to launch a . A spokesperson for the Department of Health and Human Services, Emily Hilliard, did not respond to questions about the number of employees terminated, or if they were reinstated or replaced.

In a statement, she said: 鈥淭he Trump Administration remains committed to supporting efforts to prevent traumatic brain injuries, improve surveillance, and ensure Americans have access to practical, evidence-based information that can help protect their health and safety.鈥

She said the agency鈥檚 TBI work is now handled by other staff members at the National Center for Injury Prevention and Control.

Hilliard said the CDC is deciding how to establish a cost-effective national concussion surveillance system within the bounds of current funding, and said the agency in 2026 dedicated funds to support, among other things, an about concussions, an , and concussion surveillance.

But Wolfkiel still worries about how the CDC firings and the impasse over federal funding will affect brain injury research and prevention efforts in the long term.

鈥淭he lack of resources and programs and information that鈥檚 out there is really just sort of appalling,鈥 Wolfkiel said.

A man stands outside with his arm around the shoulders of his teenage son. Both smile at the camera.
Tony Sadowski (right) serves as executive director of Camp Cranium. He first learned about the camp when a speech therapist recommended it to his son, Bryan, who had suffered a brain bleed that caused a hemorrhagic stroke at age 6. Now 18, Bryan (left) is preparing to study occupational therapy at Elizabethtown College. (Sarah Hofius Hall/WVIA News)
A whiteboard on a wall with "Thursday" written at the top outlines the activities and times for two groups throughout the day.
Activities at Camp Cranium include time on a zip line, archery, and a dance. Sadowski says that the event helps campers and parents find community and combat social isolation. (Sarah Hofius Hall/WVIA News)

Federal Funding Uncertainty

Tony Sadowski, the camp鈥檚 , remembers when his son, Bryan, suffered a brain bleed that caused a hemorrhagic stroke at age 6. 鈥淵ou鈥檙e in the emergency room,鈥 he recalled, 鈥渘ot knowing what version of your son鈥檚 going to wake up.鈥

Now 18, Bryan Sadowski has attended the camp for years.

鈥淲e're very lucky to be able to be here,鈥 the elder Sadowski said.

In 1996, before Bryan was born, Congress passed the Traumatic Brain Injury Act, which has provided many states with grants for TBI research, advocacy, and services. Since then, Congress reauthorized the act four times, largely with bipartisan support, until 2024.

It has remained lapsed since then. Trump鈥檚 secretary of the Department of Homeland Security, , supported when he was a senator. Congress is whether to reauthorize funding through 2030.

Despite the lapse in funding, money is still flowing to TBI programs at the CDC and in states, according to , president and CEO of the Brain Injury Association of America.

Congress did appropriate $8.25 million for TBI program activities through the . That鈥檚 far less than the $23 million Congress provided for each fiscal year, from 2020 through 2024, the last time it .

鈥淭he TBI Act is the only piece of federal funding for traumatic brain injury at the federal level,鈥 Willis said. 鈥淲e're aiming to preserve what we have.鈥

The funding uncertainty has not affected the handful of brain injury camps, including Camp Cranium and in Alabama, because they are nonprofits that mostly rely on private donations.

A young woman with short hair leans over a table to look at a book that that another person holds out to show her.
Brianna Engleman (right) collects song requests for a dance scheduled that night at Camp Cranium. Engleman has been a camper since 2018 and says she plans to come back as a counselor to support other campers like herself. (Sarah Hofius Hall/WVIA News)

Back at Camp Cranium, bursts of laughter, whoops of delight, and distant chatter punctuated the humid summer air.

While her fellow campers did archery or art, Brianna Engleman moved between groups, collecting song requests for a dance that evening. When she was 5, doctors performed a to relieve her of debilitating seizures. But the surgery itself can injure other parts of the brain.

She lives in Northern Virginia and first attended Camp Cranium as a teen in 2018. It was her first time being around so many people like her, said Engleman, now 21.

鈥淚鈥檝e gotten more confident,鈥 Engleman said. 鈥淚t made me think, well, there's actually good people out there.鈥

Next time she returns to camp, she said, she plans to do so as a counselor.

A boy in a blue helmet sits in a wheelchair in front of a rock climbing wall as two other people prepare ropes leading to the harness the boy is wearing.
(Sarah Hofius Hall/WVIA News)

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