The Orphan Drug Machine
KHN Video: Orphan Drugs Creating Gold Rush For Pharmaceutical Firms
The designation, which is made by the Food and Drug Administration, allows drugmakers to claim seven years of market exclusivity.
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The Orphan Drug Machine
Sky-High Prices For Orphan Drugs Slam American Families And Insurers
Orphan drugs for rare diseases have helped or saved hundreds of thousands of patients like 2-year-old Luke Whitbeck, but families and insurers are picking up the astronomical cost.
By Sarah Jane Tribble and Sydney Lupkin -
The Orphan Drug Machine
Drugmakers Manipulate Orphan Drug Rules To Create Prized Monopolies
Drugmakers have brought almost 450 orphan drugs to market and collected rich incentives but nearly a third of those products aren’t new or were repurposed multiple times, an investigation shows.
By Sarah Jane Tribble and Sydney Lupkin -
The Orphan Drug Machine
Timeline: The Orphan Drug Act
Follow the twists and turns of the orphan drug industry over the past three decades.
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The Orphan Drug Machine
Video: Former U.S. Rep. Henry Waxman Shares Deep Concerns About Orphan Drugs
The former Congressman championed the Orphan Drug Act decades ago but now he fears it’s being manipulated to make money.
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Repeal & Replace Watch
Video Highlights: Trump Vows Replacement Will Pass At Same Time As Health Repeal
President-elect Donald Trump says his administration will offer its plan to overhaul the federal health law once Rep. Tom Price is confirmed as the secretary of the Department of Health and Human Services.
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Photo Essay
A Peer Recovery Coach Walks The Frontlines Of The Opioid Epidemic
Charlie Oen was addicted to heroin as a teenager. At 25, he's now clean and a peer counselor in Lima, Ohio, where he tries to help people who started using drugs before he was born.
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Hospital Surprise: Medicare’s Observation Care
You're in a hospital and think you're admitted. Maybe not. Many Medicare beneficiaries are surprised to learn that even after spending a couple of days, they are receiving observation care, which Medicare considers an outpatient service, so the seniors' costs can be more than expected.
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Sounds Like A Good Idea? Regulating Drug Prices
Presidential candidates from both parties have proposals they say would help lower the cost of prescription drugs. But most experts say that efforts to regulate prices might not end up saving much money.
By Julie Rovner and Francis Ying -
Sounds Like A Good Idea? Selling Insurance Across State Lines
Republicans have long touted a proposal to allow insurers to sell across state lines as a way to help keep coverage costs down. But there are some significant obstacles to making such a system work, as this video points out.
By Julie Rovner and Francis Ying -
Health Care’s Hard Realities On The Reservation: A Photo Essay
For American Indians on the Cheyenne River Indian Reservation in South Dakota, getting health care can be a weeks-long proposition, and it has some moving away from their homes and families seeking better access.
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Coping with Autism and Puberty
A family struggles with what to do when an autistic adolescent becomes aggressive.Â
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Urgent Care
This model of care is one of the ways created by the Affordable Care Act to reduce health care costs while improving quality of care. You can also watch the accompanying video that explains ACOs.
By Jenny Gold -
KHN Video Analysis
Why Did The Supreme Court Uphold The Health Law’s Subsidies?
The Supreme Court Thursday upheld a key part of the 2010 health law – tax subsidies for people who buy health insurance on marketplaces run by the federal government. KHN’s Mary Agnes Carey discusses the decision with Stuart Taylor Jr., of the Brookings Institution, and KHN’s Julie Appleby.
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KHN Video: The Supreme Court Decision In King v. Burwell Could Affect Your Wallet
Confused about the latest challenge to the Affordable Care Act before the Supreme Court? The justices are expected to rule on the King v. Burwell case by the end of the month. Here’s what you need to know about it -- in less than 2 minutes.
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KHN Video: Filling In The Gaps
This video features specially trained paramedic Ryan Ramsdell, who is part of an ambitious plan in Reno, Nevada, to overhaul the 911 system to improve patient care and cut costs.
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KHN Video: Momentary Healing
Wynne Lee, 17, struggled with depression and cultural expectations for several years. The teen from Diamond Bar, California, is like many kids from Asian American families who often have trouble finding appropriate treatment.
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KHN Video: Tax Deadline Meets The Health Law
As April 15 approaches, most of the consumers who didn't get insurance coverage face penalties while others who used federal subsidies to buy their plans must reconcile their actual earnings with the estimates that they made last year.