[Editor’s note: This transcript was generated using transcription software. It has been edited for style and clarity.] 

Julie Rovner: Hello from Ñî¹óåú´«Ã½Ò•îl Health News and WAMU Public Radio in Washington, D.C. Welcome to What the Health? I’m Julie Rovner, chief Washington correspondent for Ñî¹óåú´«Ã½Ò•îl Health News, and as always I’m joined by some of the best and smartest health reporters covering Washington. We’re taping this week on Thursday, June 25, at 10 a.m. As always, news happens fast and things might have changed by the time you hear this. So, here we go. 

Today, we are joined via videoconference by Maya Goldman of Axios News. 

Maya Goldman: Hello. 

Rovner: Joanne Kenen of the Johns Hopkins Bloomberg School of Public Health and Politico Magazine. 

Joanne Kenen: Hey, everybody. 

Rovner: And my Ñî¹óåú´«Ã½Ò•îl Health news colleague Rachana Pradhan. 

Rachana Pradhan: Hey, Julie. 

Rovner: No interview this week, but way too much news, so let’s see how much we can squeeze in. We’re going to start this week at the Department of Health and Human Services, where we have a pair of stories about grant funding passed by Congress and signed into law by President [Donald] Trump still not getting where it’s supposed to go. , our podcast pal Paige Winfield Cunningham reports that states and health organizations are waiting for nearly half a billion dollars for a variety of programs, including suicide hotlines and opioid addiction treatment centers, because of a convoluted clearance process that involves artificial intelligence and political appointee sign-offs to, quote, “ensure alignment with Agency priorities.” Quoting from Paige’s story: “One former career staffer at the CDC who served under four administrations said fewer than five or six grant notices in a year would typically get reviewed at the HHS level. Now it’s all of them.” , except this one is about delays in grant funding from the National Institutes of Health, where with just three months left in the fiscal year, 90% of the $37 million in grant funding from the National Institute on Disability, Independent Living, and Rehabilitation [Research] has yet to be released. I know I sound like a broken record, but that’s not how any of this is supposed to work, right? 

Goldman: Right. 

Pradhan: No, I think this is, more or less, some version of this has been going on since January, February of 2025, but I think now it’s being more institutionalized in federal policy. That’s what they’re attempting to do. Whereas in the first few months of the current Trump administration, it was instituted at â€” “haphazard” probably doesn’t really do it justice â€” but it was sort of this very chaotic process of instituting these new layers of political appointee review on what federal money was funding, ultimately, right? And whether political appointees decided that it was something that they thought the federal government should be doing. 

Rovner: At the beginning, they just froze everything. 

Pradhan: Right. 

Kenen: They cut everything. 

Pradhan: And then they— 

Rovner: Then they cut everything 

Pradhan: â€”started cutting things. Right. Things like which we’ve all talked about and done plenty of reporting on, right? Things that aren’t supported by political appointees, regardless of their scientific merit, right? And so now this has sort of taken on an even broader evolution, so that it is formal federal government policy regulation that political appointees can review every dollar that goes out for anything, almost, right? All grantmaking, which is just an extraordinary sum of money. 

Goldman: Yeah. 

Rovner: And Congress, remember Congress, which owns this spending power, said in last year’s appropriations, You will spend this money the way we are telling you to. And the president signed those bills, promising to do that, and now is not. Maya, you wanted to say something. 

Goldman: I was just going to say, I think there was so much focus â€” like Rachana said, when in the DOGE [Department of Government Efficiency] era â€” on federal funding in healthcare and getting trapped in this purgatory space, and I think there’s maybe a misconception that that has kind of stopped. But it’s still, like you said, it’s becoming institutionalized. It’s the opposite of stopped. And like you said, Congress, this was not Congress’ intention. So it’ll be very interesting to see what happens, especially as these OMB [Office of Management and Budget], this OMB guidance for— 

Rovner: Which we’ll get to in a second. But before we get there, this is not just happening at HHS. It’s happening in other parts of the Trump administration. Former KFF Health Newser Anna Maria Barry-Jester  that over at the State Department, the administration is defying congressional orders to continue to spend money on food, medicine, and other humanitarian foreign aid that used to go out under the auspices of USAID [the U.S. Agency for International Development], which the administration dissolved last year without congressional permission. As at HHS, State Department officials are not only not spending the money as Congress directed, but when members of Congress have asked, officials have simply not responded to their request. Not surprisingly, for those who have been paying attention, a lot of this circles back to Russell Vought at the Office of Management and Budget, who has said many times he believes that the president, rather than Congress, should exercise the majority of federal spending power, regardless of what the Constitution said. Is there a point where Congress, which is increasingly unhappy with the president over a lot of things right now, including a lot of Republicans, does take its spending power back? 

Kenen: But they can’t cut the check. Congress has made its displeasure on the spending, they voiced it before. Congress is getting a little friskier right now, but they yielded a lot of their power to the executive branch, and there’s a lot more tension going on right now on other things. They can yell and scream and pass bills, but if the executive branch of OMB, which has explicitly basically said: Congress, you give advice. You don’t decide. Even though that’s pretty much what they’ve said since 2025. So Congress can’t run over to the OMB and get into the federal treasury and take out a bunch of cash and go give it to some rural hospital somewhere, or NIH, or some scientists. They can pass the law, but they can’t â€” it’ll probably, this too, will end up with the Supreme Court at some point. But they’ve been reluctant to, certain battles they have, everybody’s sort of constitutional crises, they’ve tried to avoid to date, although not entirely. 

Pradhan: Well, like Joanne said: What can they really do? I’m not a lawyer. I don’t know. What beyond sort of kicking and screaming can they do? 

Kenen: Well, they can, I think they could probably take it to court on a separation of powers or constitutional powers, but I think that that’s the ultimate constitutional crisis that people have been afraid to hit that button. 

Rovner: There was a Supreme Court decision in the Nixon administration that said the administration can’t impound money appropriated by Congress, and that’s what Russell Vought would like to have go back to the Supreme Court, because he thinks this Supreme Court might overturn it, but they haven’t yet. I guess everybody’s afraid to kind of call the bluff. 

Kenen: Because it gets us into an even messier territory than we are already in, and we are in a very messy territory. 

Rovner: We are definitely in a very messy territory. Algae filled. 

Kenen: Algae-filled, yes. 

Rovner: We’ll get to that. Moving on, as Maya already hinted, there are these proposed new rules from the aforementioned Office of Management and Budget that would give political appointees even more power over how federal grant funding is distributed. It turns out that buried in that proposal is language that would effectively disqualify from funding most research into diversity, equity, and inclusion, what this administration defines as, quote, “woke.” I would add, this comes as the journal Science reports that  of scientists who are women or from underrepresented racial and ethnic groups found that those who participated in a special undergraduate program sponsored by the National Institutes of Health were twice as likely to earn their PhD than peers who didn’t participate in those programs. In other words, at least in this case, DEI works if your goal is to achieve more representation in science. But I guess that’s no longer the goal, right? 

Goldman: I think there’s also so many research questions that have real impact on people’s health that just must by nature incorporate words that would be flagged as DEI, and so we could miss out on real scientific breakthroughs if this goes through. 

Rovner: Yeah, they’ve apparently got these AI programs that are just grabbing off words like “gender” or things that might in scientific contexts have nothing to do with DEI. 

Pradhan: And I think one of the things about DEI, too, that probably gets lost in the current era is that it definitely has, of course, a racial and ethnic component, but also it has a big gender component. In science and across fields, DEI programs have benefited women, wholesale. So I think, and if that’s the goal, to undo these things, it won’t necessarily just have consequences for racial and ethnic minorities but women scientists in other fields also. 

Rovner: One of the big stories I covered in the early ’90s was the fact that women weren’t allowed to participate in most clinical trials, because scientists were afraid that they would, the fact that: Oh my God. They have hormones. They would mess up the results. And as a result, so many medical breakthroughs, we had no idea if they worked on women or not, because women were never tested. That only changed when women members of Congress insisted that the NIH start including women in their clinical trials. And again, a lot of these programs to bring more women into science have helped. There have been blind spots about gender, so it really has been, if not for quote-unquote “affirmative action” for women, there would be an awful lot of stuff that we simply would not know about women’s health. I only add that up as: These things in the 1990s were really bipartisan.  

So Wednesday was the fourth anniversary of the Supreme Court’s Dobbs decision that overturned the five-decade-old right to abortion under Roe v. Wade. And in a twist I don’t think any of us could have predicted, even though nearly half the states have banned or severely restricted abortion during that time, there were nearly twice as many abortions in 2025 as in 2021, the last full year before Roe was overturned. Rachana, how did this happen and how much does it have to do with mail order abortion drugs? 

Pradhan: Quite a lot. Yes, I don’t think this is something that anti-abortion groups at all expected or wanted to see. Certainly not what they wanted to see. After Roe v. Wade was overturned, pills being sent via telemedicine or telehealth is a big part of this. Even women in states that have enacted almost total bans on abortion are still able to get pills in the mail, and that is responsible for this, in large part. 

Rovner: And of course, anti-abortion groups are furious that the Trump administration’s FDA [Food and Drug Administration] has not rolled back the policy yet that the Biden administration put in during covid allowing the mailing of these pills. Now they’re agitating for acting attorney general Todd Blanche to drop the government’s defense of a case that was filed by Louisiana challenging that mail delivery of mifepristone. But even if that were to happen, medication abortions can continue just by using the second pill in the two-pill combination that’s used for abortion, which is misoprostol. And states can’t really ban misoprostol, because it’s used for so many other things, right? 

Pradhan: Right, they would be â€” I don’t know. Never say “never,” I guess. But it would be, it’s hard to see a path for that. Yeah, so our colleague Kate Wells, who’s based in Michigan, wrote this great story this week stating this exact thing, right? Because even though the research shows that the combination of two drugs for medication abortion, so mifepristone and misoprostol, taken together is the most effective, but that doesn’t mean the misoprostol alone does not work. And so it does work â€” it’s just not as effective. And there might be some greater potential for side effects â€” right? â€” if you only take the latter medication. So yeah, it’s not, so it’s not so easy â€” right? â€” to cut off access. 

Rovner: Meanwhile, let’s talk about the politics of this. Democrats who had been hoping to ride support for abortion rights to electoral ascendance may either be over- or underconfident. That’s according to  by our podcast panelist Alice Ollstein of Politico. Since Dobbs was overturned, voters, even in some pretty red states â€” I’m looking at you, Missouri â€” have approved ballot initiatives to ensure abortion rights in those states. But that hasn’t translated into votes for Democrats in many of those states. Voters approved the abortion rights referendums and voted back in Republicans who are anti-abortion. What’s up with this? 

Goldman: I think one interesting point that Alice made in that article is that a lot of voters think, OK, I voted for abortion rights, so now I can vote for other candidates based on other issues. Which is a super interesting trend to watch, especially to see if that trickles into other policy areas, too. 

Rovner: Yeah, I had not thought about that until I read Alice’s piece, and it’s like, yeah, that makes good sense. In the past, I think anti-abortion voters have very much been single-issue voters, but abortion rights voters have not. They want abortion rights, but they also want other things, and I think a lot of them in some of these states think, Well, we’re protecting abortion rights here in our state, so it’s OK to vote for this anti-abortion politician, even though they didn’t think all the way through that that anti-abortion politician in a federal office might vote for a federal ban that would override what you just voted for in your state. Joanne, you wanted to say something. 

Kenen: I think a lot of people don’t connect dots or don’t think things through. We know that in these very, very, very red, some of the most conservative states in the country, have voted big for Medicaid expansion when it became a ballot initiative, and then they went ahead and voted the same people who had fought it for years back into the governor’s mansion and back into the legislature. So I think, whether people don’t connect dots or that all of us can hold contradictory, more than â€” all human beings have some contradictory thoughts and impulses. I can’t explain exactly why this is happening . But it’s not only abortion. It’s particularly acute. Americans are for more gun control than our lawmakers, or gun regulation, than our lawmakers enact, and yet they keep voting in people who limit gun ownership or gun rights more stringently than the public in polls says they want. So this is one of several hot-button political issues â€” abortion and gun control, arguably the most domestically hot-button there are â€” that there is this inconsistency, and I don’t know that anyone’s really successfully explained it. It’s not just low information. It’s more than that. It’s, Yes, I want this, but I also want that. 

Rovner: Right. It’s holding two thoughts at the same time. You’re right. It’s a human thing. 

Pradhan: Well, and Julie, you mentioned this, right? Which is that a single-issue voting on abortion on the left is not â€” yeah. And Alice says this in the lead of her story â€” right? â€” which is the main issues of the day right now are affordability concerns across gas, food, housing. That does seem to still be the driving concern, and understandably so, right? Everything is more expensive, much more expensive than it was two years ago. So people are hurting, and so I don’t know that abortion rights would surpass, or people who are more likely to support an abortion rights ballot initiative are ones that are also not going to be inclined to vote for Republicans on the ballot during the midterm elections, because they’re not happy with some of those other, broader affordability issues. 

Rovner: Yeah, I think affordability is clearly going to be the issue of the moment, probably still when we get to the midterms. But who knows. We’ve got a whole summer to get through. All right, we’re going to take a quick break. We’ll be right back. 

Moving on to vaccine policy, you might remember back in April when we talked about a study by researchers at the Centers for Disease Control and Prevention that found last year’s covid vaccine reduced hospital visits and hospitalizations by more than half. It was supposed to appear in the CDC’s journal, the Morbidity and Mortality Weekly Report, but it was spiked by NIH director and acting CDC director Jay Bhattacharya, who said the study had methodological issues. Well, apparently that wasn’t a problem for the peer reviewers at the Journal of the American Medical Association, because the study is in this week’s . But even though it’s out there now, how is the public to have any idea who to trust when it comes to science policy? We’re now here, we have peer-reviewed journals that are publishing one thing and the government saying, No, this is not good enough. Did the doubters win simply by sowing doubt? 

Goldman: It’s a great question, and I think that’s a very interesting dynamic with this administration, is that the health officials in this administration have rose to prominence on a platform of bringing trust back into federal health policy. And I think for many people you could argue that there is less trust than there was at the beginning of the administration. And certainly not for everybody, but it’s just there are a lot of wires being crossed in different directions, and it’s hard to know where to go. 

Pradhan: I think one of the things I think about when it comes to trust in the government, like Maya said, right? We have, OK, so there are definitely certain voters that now do not trust the CDC and the government nearly as much, if it all, because of who is in charge. So distrust has arisen among those people. But when I talk to people who are supporters of the “medical freedom” movement and who are very skeptical of vaccines for themselves, for their children, I’ve asked them sometimes, Look, you’re seeing these changes, even going back to last year. This year, the CDC Advisory Committee on Immunization Practices, they made a bunch of changes to the U.S.’ vaccine schedule. And I asked, I remember one time I did an interview and I said, “Well, do you trust the CDC now?” And it’s not a slam dunk. People who are so distrustful of institutions and government agencies and even the medical system or our healthcare system, it’s not like they’re like, “Oh, yes, please, like everything the government says now, you know, I’m just going to take it at face value and just believe it.” It’s almost like it’s like a misunderstanding. I kind of wonder this for the people who are in charge, like leaving government now. It’s like: Do you understand this? Because they’re not just automatically going to take what you say. It’s sort of antithetical to years of thinking, potentially, that they’ve had, right? So— 

Goldman: That’s such a good point. 

Pradhan: I don’t know that now, all of a sudden, are they going to become just a mouthpiece for what RFK Jr. [HHS Secretary Robert F. Kennedy Jr.] and his political appointees are saying. I don’t think so. 

Rovner: I think they’re just making everybody mistrust everything. Joanne, you wanted to add something. 

Kenen: I think, I do a lot of work on trust in healthcare, and I’ve been all over the country the last couple of months since our book came out, talking about it and being on panels. And it’s really, I mean, it’s a cliche to say distrust in healthcare or the health system or public health is an existential crisis. It’s a cliche we’ve heard all the time. But just because it’s a cliche doesn’t mean it’s not a crisis. The divisions in our country spill over from the politics into things that determine whether or not we and our families and our friends and our kids are healthy or not healthy, and I think this sort of whiplash of deep distrust of the other side is probably going to continue for some years as political officeholders and appointees change. But this, the CDC, I’m not â€” the last poll I saw, I’m not sure if it’s a record low of trust, but it’s definitely plummeted. But it’s the Democrats who used to trust the CDC, now don’t. Now, maybe that’ll rise again when the new CDC director, she’s confirmed, which is likely. Maybe she’ll be able to rebuild, and maybe things will get a little bit better. But right now, there’s so â€” a combination of deep distrust and a whole lot of mixed messaging. It can be very confusing to understand medical advice, and it can be very hard to access our medical system. So it’s just this really toxic brew of risk factors mixed in with the distrust. 

Rovner: Meanwhile, we had a real-world example of distrust and re-trust in public health this week. Secretary of Defense Pete Hegseth has quietly reinstated requirements for new military recruits to be vaccinated against the flu after a flu outbreak at Lackland Air Force Base sickened more than 200 recruits, with four people hospitalized. Hegseth had removed the mandate, which had been in effect since the end of World War II, with much fanfare back in April. Didn’t take long to kind of see why that mandate made sense, right? 

Kenen: Yes, because this is actually a force readiness issue. It’s not just, Oh, people got sick. Most young, healthy people, and most people in military service â€” most, not all â€” are young and healthy. These were recruits. These were young. Most of them are going to be OK. But first of all, not all of them are going to necessarily be OK. There’s one possible death. The last I heard that somebody had died, but it wasn’t necessarily from flu, and that was under investigation. And one of you may have more recent information than what I read a few days ago. So, we have four people hospitalized. We do not have a confirmed death. But it was 160 people, which is a whole lot of people. And if it happened here, it’s a big red flag, because your soldiers are supposed to be ready to fight, not in the bed with the flu. So, it happened in one particular location, but it really should have showed this national security interest. You really don’t want your fighting force with a 104 fever and feeling crappy. 

Rovner: I would say it’s also completely predictable that when you bring— 

Kenen: Yes. 

Rovner: â€”a whole bunch of people in and have them sleep together in close quarters and stress them physically and mentally, which is what basic training does, and then somebody gets sick, it’s going to spread. 

Kenen: It’s also one, that’s really one of the big causes of the spread of the 2018-2019 â€” I mean, excuse me, the 1918-1919 so-called Spanish flu, which it wasn’t. It was actually, a lot of it was spread â€” it was just as we were getting into World War I. There was a lot of young recruits. A lot of it’s â€” there’s argument about exactly what happened where, but certainly a base in Kansas was one of the big spreaders of that, of what became a global pandemic. 

Rovner: In other words, we’ve seen this TV program before. 

Kenen: We didn’t have —right. We didn’t have vaccines yet. It wasn’t— 

Rovner: We didn’t have TV either, but, yeah. 

Kenen: We had imagination, right? 

Rovner: Point taken. 

Kenen: We had carrier pigeons. 

Rovner: All right. 

Pradhan: I feel like anyone with school-age children or kids who are in college could’ve. It’s like, Oh, who could have predicted?&²Ô²ú²õ±è;³Û´Ç³Ü&²Ô²ú²õ±è;³ó²¹±¹±ð&²Ô²ú²õ±è;—&²Ô²ú²õ±è;

Rovner: Yeah, yeah. 

Pradhan: â€”massive numbers— 

Rovner: Any parent. 

Pradhan: â€”of people in a small place, and Oh, look, a flu outbreak. It’s as inevitable as things can be these days, right? I think that this probably is pretty high up there, right? 

Rovner: Yeah. All right. Well, so, moving on. In things I definitely did not have on my bingo card for 2026, Indiana is imposing price controls on hospitals. Under the new law, as reported by my Ñî¹óåú´«Ã½Ò•îl Health News colleagues Phil Galewitz and Samantha Liss, hospitals in the state will have to charge employer health insurance plans no more than a multiple of what they pay Medicare, or else run the risk of losing their tax-exempt status. Now, Vermont also does this, but Indiana is politically very much not like Vermont. Is this the leading edge of a Republican backlash to high healthcare prices? 

Kenen: Maybe. We just don’t know. You know — Indiana’s Indiana. But we have, and we’ve talked about it— 

Rovner: Indiana’s really red, though, and they have a really red governor who used to be a really red senator. 

Kenen: Yes, but we don’t know what’s going to spread, right? But what we’ve talked in the podcast frequently over the last couple of months, hospitals are in the spotlight about pricing in a way that they haven’t. We’ve been really focused on drug prices. And we’ve sort of, we have a different relationship with hospitals. And we also all don’t get hit by hospitals every year, where most of us do buy drugs, so â€” but hospitals are really getting a lot of attention, bipartisan, I mean, in red and blue states, in Congress. There have been hearings. It’s not like the tobacco executive hearings, but it is sort of a lot more skeptical of why do hospitals, are they â€” to use the buzzword of the day â€” why are they so unaffordable? Why are your bills so inexplicable? Why can’t you understand? So, the whole system is based on cost shift, and one reason hospitals have been pressed to charge a lot more than Medicare is they say that Medicare payments don’t cover their costs, and they â€” it’s the great big, the shell game of American healthcare. But I don’t know that we know what the next step is state-wise. But you know what? It may be a domino. We don’t know yet. 

Rovner: I know I’m interested watching the backlash of Republicans against high healthcare spending. They’re coming out against managed care. They’re coming out against hospital prices. I will point out that for my entire career, the person who’s been loudest about nonprofit hospitals overcharging has been [Sen.] Chuck Grassley. 

Kenen: Right. 

Rovner: Very Republican senator from Iowa. 

Kenen: It’s not just that they — right. He’s been consistent on this for decades, and he’s said that it’s not just that they charge a lot. It’s that: What are they really doing to deserve that? They’re supposed to get a tax break in exchange for community benefits. But show me the benefit. How are you defining and measuring? And is it truly a benefit to the community, as a layperson would think of, Oh, benefiting the community? Or is it some little niche thing that they say is their public service. 

Pradhan: And one thing about Indiana in particular, I think Samantha Liss, who’s one of the reporters on the story you mentioned. Right, Julie? Actually two years ago, what’s really interesting is she had written also about, I think, and this is sort of a case study, I think, somewhat â€” right? â€” in how consolidated your healthcare markets are. Right? I think that that’s a big driver as to whether a state or a governor or anyone wants to take action on these things. I remember she wrote about these two rival hospitals that were in Terre Haute, Indiana. They were seeking to merge, and then they pulled back their merger application because there were so much opposition, because it would have left â€” Terre Haute is like a city of maybe close to 60,000 people, and for that city and the surrounding area, they would have had only one hospital operator. So, and that was a big deal at the time. So I think Terre Haute, Indiana, is far from the only place where that is sort of a living reality, right? And that’ll be a big motivator, I think, sometimes, too. 

Rovner: But, yes, I will say that both Indiana and Vermont have a lot of these small, sort of midsize consolidated areas where hospitals can basically charge at will. Maya, did you want to say something? 

Goldman: Yeah, I was going to add, I think Indiana has been on the cutting edge of a lot of health policy, especially among red states. They’ve done a lot with price transparency and employer advocacy, and so it’s not surprising to see Indiana do this as much as it would be a different red state. I think it does really indicate to me that people in the state, state governments, and citizens are really frustrated that Congress isn’t acting fast enough for them. They’re, like Joanne said, there’s a lot of discussion happening in Congress around hospitals and needing to lower prices, but there’s not a lot of action happening. And people have power to do that at the state level, and they’re exercising it. So I think we will see more happen there. 

Rovner: Here’s another issue where states sort of have power. While we were talking about strange bedfellows, Colorado has become the second state, after Florida, to get FDA approval for a plan to import cheaper prescription drugs from Canada. Except Florida hasn’t been able to get its program up and running, because it can’t find a Canadian wholesaler that’s willing to sell the drugs to them. What makes Colorado think that they’re going to have any better luck? And mightn’t both of these states just take a page from Indiana and think about their own price controls, if that’s what they want, rather than importing Canada’s price controls? 

Kenen: I can’t imagine if Colorado decided to do price controls that it wouldn’t be stuck in court. We’ve joked over the years that if you want your child to have full employment for life, become a healthcare lawyer? I think that if Colorado were to do that, which it really just suggested, it would not be immediately reality for consumers. There’s so much cost shifting in healthcare, because our system is just insane, that everybody can say, honestly, I’m not the only culprit. The whole system is too expensive with all this indirect shifts of costs and confusing charges, and it’s hard for experts to understand. 

Rovner: I feel like a lot of federal members of Congress have also sort of looked at these. Let’s import cheaper drugs from somewhere else.  

Kenen: Because it sounds good. 

Rovner: This has been going on since the ’90s. 

Kenen: Yeah. 

Rovner: And nobody’s been able to make it work. And Canada has said very clearly, it’s like: We can’t sell you all of our drugs or we won’t have enough drugs for the people here, which is who we buy drugs for. 

Kenen: But it sounds good. 

Rovner: It does sound good. 

Kenen: And that’s why it’s gone on for 30 years now, closer to 40. 

Rovner: Yeah it is 30 years now. 

Kenen: Yeah, and if you live in New England, you can go to Canada and get them, but there’s been sort of on-paper authorizations to do it for quite a â€” I don’t remember when the first one was, Julie. It was a long time ago. 

Rovner: Yeah. Well, they’re â€” yes, they allowed the FDA to allow states. The first one that actually sort of in theory became legal was the Florida one. And again, that was a couple of years ago, and it’s not off the ground. All right. Well, finally this week, in a drug price adjacent story, props to our podcast pal Lizzy Lawrence at Stat for the  of the week. Lizzy revealed that drugmaker Eli Lilly granted compassionate use to an unnamed 79-year-old individual to use its still-investigational obesity drug retatrutide, which trials have so far shown to be even more potent than Lilly’s other blockbuster obesity drug, tirzepatide. Now, compassionate use is supposed to allow people with terminal conditions to get early access to promising drugs that are not yet approved. Apparently, this patient is not only obese but has obstructive sleep apnea and pulmonary hypertension. Yet both of those conditions, while very serious, are not considered terminal. So the obvious question here is: Who is this 79-year-old patient, and is he named Donald Trump? So far, nobody’s been able to find out, though the White House has been very adamant, at least after Lizzy’s story came out, that it is not the president. So, why is everybody so excited about this story? 

Kenen: Because it’s weird. 

Rovner: Fair. 

Kenen: Lizzie’s story is great, but it’s just a strange saga, right? And in her first story, she said someone who was 79 at the time, which was a couple of months ago, because President Trump just turned— 

Rovner: Turned 80. 

Kenen: Right. The idea that one person and only one person would get this drug. And we all remember he did get â€” and that was life-threatening. I’m not saying he shouldn’t have gotten it, but he did get it, a monoclonal antibody, when he was hospitalized with covid in his first term. And it may have saved his life. But that was a life-threatening situation. 

Rovner: Yes, that’s what compassionate use is supposed to be used for. 

Goldman: Right. And I think it obviously does matter who, if this person is President Trump. But I think Lizzy does a really good job in the story of explaining that, regardless of who this person is, this is not typically how this program is used, and so it should raise eyebrows that the administration and Eli Lilly are allowing this to happen, regardless of who the person that’s getting this is. 

Kenen: And it could be somebody who has a connection to Lilly. It could be anything, right? It’s a tantalizing question, but we don’t know. 

Pradhan: Yeah, and I do think it sort of begs the question. The White House, after the story published, only firmly said it was not the president. Probably would have been very helpful for them to have said that prior to the story publishing. Why they— 

Rovner: And they were asked. 

Pradhan: Of course, they were asked, right? They were asked, and they did not directly answer. I don’t pretend to know why that decision was made, but I think it probably would have been a good public service to definitively say whether it was the president or not before the story first ran, before it sort of caused this big hullabaloo on social media and elsewhere, right? 

Rovner: And perhaps predictably, Democratic Sen. Maggie Hassan of New Hampshire has now written a stern letter to the administration, demanding — and I believe also to Lily â€” demanding to know if not who this is, at least how this happened, because it is an unusual use of the compassionate use exception. 

Pradhan: Can I ask a question also? This is one thing that I was wondering when reading Lizzy’s story is, so clearly certain people in the NIH and the FDA are HIPAA-protected individuals. So if they were to release or leak identifying information about this patient, that’s not allowed. But not everyone is, surely. Do we really think â€” someone must have seen the details of who this person is. And they would not be subject to HIPAA [the Health Insurance Portability and Accountability Act] if they were to cough up the name, right? 

Rovner: Well, I’m sure that people will continue to see, including those of us here at Ñî¹óåú´«Ã½Ò•îl Health News. All right, that is this week’s news. Now it’s time for our extra-credit segment. That’s where we each recognized a story we read this week we think you should read, too. Don’t worry if you miss it, we will post the links in our show notes on your phone or other mobile device. Joanne, your extra credit involves the second-buzziest story of the week, the saga of the green Reflecting Pool. Please tell us about it. 

Kenen: OK, one story that’s my extra credit, and one story I’m also going to, related story, that I’m going to just give a shout out to. Sarah Kaplan at The [Washington] Post wrote “.” And basically she talks about climate change and health, and that the reason that there’s this algae â€” and actually there’s many kinds of algae. I’m not an expert on all the kinds of algae. But there is one called cyanobacteria, which is highly toxic. It is present â€” my understanding is it’s among several kinds of algae in the Reflecting Pool. But it is becoming more dominant because of climate change. And that’s toxic. That’s not a good thing to have. What I didn’t know â€” I don’t want to go on too long â€” but it’s sort of fascinating that they fill the Reflecting Pool with water from the Tidal Basin, which is the surrounding, the water that, for the people who aren’t in Washington, is the water around the Jefferson Monument and the cherry trees and all that, which in turn comes from the Potomac River, which is polluted. And painting a reflecting pool and then pouring in polluted water might not have been the smartest thing to do. And also apparently the American flag blue is darker than the old gray and it retains more heat and makes the problem worse. So sort of the big public health message is that â€” here the big joke is Making Algae Great Again â€” but that there is saying something about the state of our planet and the state of our water, and that even things that we think of as harmless are not necessarily harmless. And then, just relatedly, for anyone who’s really interested in good reporting on this and great writing on this is the cultural critic of The Washington Post, Philip Kennicott, has been writing a lot about the changes to Washington, and  the Reflecting Pool and called, he said it looked like a kale smoothie. 

Pradhan: Oh. 

Rovner: Vivid. OK, Maya. 

Goldman: My extra credit this week is from Stat. It is an article by O. Rose Broderick called “.” And I think this is a potentially very consequential move from the Trump administration that isn’t getting enough coverage. The SparkNotes version is that the Supreme Court held in 1999 a decision known as Olmstead that said you can’t have unjustified institutional isolation of people with disabilities â€” that’s a form of discrimination. The Trump administration put out a memo sort of reinterpreting what unjustified institutional isolation means. This notably doesn’t change existing laws around integration requirements for people with disabilities, but it signals where the Trump administration’s head is at with regards to disability rights. And the article also notes that the motivation for this change isn’t really clear, especially since community care is usually cheaper than institutional care. But it does mention that one possible factor could be to give the government more flexibility to tackle homelessness, perhaps by forced institutionalization. So, certainly one to watch. 

Rovner: Yeah, definitely. Rachana. 

Pradhan: So my extra credit is a story [“Arrests of Immigrant Parents Create Mental Health Crisis for Children”] written by our [Ñî¹óåú´«Ã½Ò•îl Health News] colleague Claudia Boyd-Barrett. It is just devastating. If I, so â€” grab a tissue box if you’re going to read it. She wrote about how, the consequences for children who have parents that are either detained by ICE [Immigration and Customs Enforcement] or deported out of the United States, and she has these incredible, really just heartbreaking stories of these children who have been separated from their parents and sort of the emotional toll that it is taking on them. So it’s, the way I think about it is it’s, during the first Trump administration there was a big thing about families being separated at the border, and it was the family separation crisis. But now it’s happening again, just not at the border necessarily. 

Rovner: Yeah. It is quite a story. Well, my story affects both immigration and disability. It’s from The Washington Post. It’s by Sylvia Foster-Frau, and it’s called “.” Now, this is a state program that’s separate from Medicaid, called Children’s Special Services, that helps low-income families with children with disabilities pay for critical things like wheelchairs and feeding tubes and ventilators. Until now, it has served families with no other way to get care, including those who are undocumented and therefore ineligible for Medicaid. But now, the 400 families on the program have been notified by the state that if they want to keep their benefits, their immigration status will be reported to federal authorities. The story profiles one family, asylum seekers from Honduras who have a 10-year-old with spina bifida and autism and whose care, including wheelchairs and catheters, has so far been paid for by the program. Now the mom says she’s going to have to drop out of the program rather than risk being deported, but she has no idea how she will pay for the care that her son needs. It is also pretty wrenching. 

OK, that is this week’s show. Thanks to our editor, Emmarie Huetteman, and our producer-engineer, Francis Yang. A reminder, What the Health? is now available on WAMU platforms, the NPR app, and wherever you get your podcasts, as well as, of course, kffhealthnews.org. Also, as always, you can email us your comments or questions. We’re at whatthehealth@kff.org, or you can find me still on X, , or on Bluesky, . Where are you guys these days? Joanne. 

Kenen: I am mostly on  and Bluesky, . 

Rovner: Maya. 

Goldman: I am also on  and still on X, . 

Rovner: Rachana. 

Pradhan: You can find me , , and , @rachanadpradhan. 

Rovner: We will be back in your feed next week. Until then, be healthy. 

[Editor’s note: This transcript was generated using transcription software. It has been edited for style and clarity.] 

Julie Rovner: Julie, hello from Ñî¹óåú´«Ã½Ò•îl Health News and WAMU Public Radio in Washington, D.C. Welcome to What the Health? I’m Julie Rovner, chief Washington correspondent for Ñî¹óåú´«Ã½Ò•îl Health News. And, as always, I’m joined by some of the best and smartest health reporters covering Washington. We’re taping this week on Thursday, June 18, at 10 a.m. As always, news happens fast and things might have changed by the time you hear this. So, here we go. 

Today, we are joined via videoconference by Lauren Weber of The Washington Post. 

Lauren Weber: Hello, hello. 

Rovner: Sheryl Gay Stolberg of The New York Times. 

Sheryl Gay Stolberg: Hi, Julie. 

Rovner: And Anna Edney of Bloomberg News. 

Anna Edney: Hello. 

Rovner: Later in this episode, we’ll have my interview with Michael Cannon of the libertarian Cato Institute and Liz Fowler of the Johns Hopkins Bloomberg School of Public Health. Michael and Liz, who are on opposite sides of most things in the health debate, are jointly promoting the idea of eliminating, or at least scaling back, the employer health insurance tax exclusion that underpins much of the U.S. healthcare system but also drives up health spending. But first, this week’s news. 

Let’s start this week on Capitol Hill, where Democrats in the Senate say they plan to use the Congressional Review Act to force a vote to disapprove the Trump administration’s Affordable Care Act payment rule that was finalized in May. For those who haven’t been paying close attention, this is the rule for next year’s plans. It includes things like allowing non-network plans that could open policyholders to unlimited out-of-pocket spending, or else possibly no available providers of care in their area, as well as new catastrophic policies with lower premiums but deductibles well into the five figures. 

The CRA is a handy tool for Congress. It allows the minority to force a vote on the floor and only requires a simple majority of both houses to pass. Few rules are actually canceled using this procedure, but it does allow members of Congress to highlight an issue, in this case playing into Democrats’ desire to keep one of their best midterm electoral issues, healthcare, front and center. So, will this succeed at getting attention, even if it ultimately doesn’t cancel the rule? Or is there just too much else going on right now? I have to say, I haven’t seen a lot of coverage of this other than from my colleague Julie Appleby. Bless her heart for bringing this story to everybody’s attention. 

Stolberg: I think that by November this will resonate. We’re in a situation now where costs are rising, gas costs are going up, and they may go down if this Iran deal goes through, but healthcare and the cost of care is always an issue for Americans. It’s long been an issue that Democrats have led on. I actually find it interesting. What [President Donald] Trump is trying to do really kind of undercuts the very premise of Obamacare, which was to offer kind of a baseline level of care, to require that plans gave people a baseline level of care. You know, come November, it’s going to be just after the enrollment period of October, and I think Democrats are going to be talking about this. And then, it might not resonate or break through now, but they will point back to this vote in this moment. 

Edney: Yeah. I was going to say that I do think it’s possible by then. I think you were right to say that right now it’s hard for things to break through, but by the midterms we may see, as a direct result of this, people losing coverage. And I think that coverage losses â€” or deciding not to have coverage any longer, because it’s too expensive. So, I do think that coverage losses, whether it’s in the ACA marketplace or Medicaid, are going to be a big campaign issue. And if Democrats can point to this vote as a direct line to We support you having your coverage and Republicans don’t, that could be something that breaks through to those potentially millions of people who no longer have care. 

Rovner: Yeah, last week I described this as the drip, drip, drip of declining coverage, which is that we sort of keep seeing these things bit by bit. Rather than sort of one dramatic, Oh my goodness, I can’t afford my coverage and I’m going to drop it, we’re seeing people scrambling to try and keep coverage, or to buy down to have less expensive plans with bigger deductibles. And then, once they start to seek care, they’ll realize they can’t handle those deductibles. So it’s happening in pieces rather than all at once. 

Well, speaking of that Affordable Care Act rule, props to the eagle-eyed Reed Abelson, your colleague at The New York Times, Sheryl, for spotting a little-noticed piece of the rule that allows insurers to offer loans to patients who can’t immediately come up with those multi-thousand-dollar deductibles should they need medical care. Now, this is not a new idea. Overall, veterinarians have long offered payment plans to pet owners, as have health practitioners, whose services are often not covered by insurance, like cosmetic surgeons. But for necessary medical care, it seems like loading patients with still more medical debt seems like a less-than-popular solution to high healthcare costs. Or is that just me? Lauren. 

Weber: I mean,  was a blockbuster, and also just horrifying. And what kind of dystopian future are we all in? Instead of paying your premiums, you’re also paying your payment plan to the same people. It’s already been said enough that there’s some concern that health insurance plans are gobbling up so many parts of the healthcare market. You wonder what happens when they also become essentially your mortgage broker. And so I think the story deserves a lot more attention, because I think a lot of Americans would be quite terrified if they realized that is potentially the future. 

Edney: And it seems like the point should be to make coverage more affordable, not to find new ways for you to pay the same really high amounts. 

Stolberg: I just was going to say I thought it was interesting that Reed pointed out that roughly a third of Americans have some kind of medical debt, and she linked to an analysis, a  in HealthAffairs, about medical debt and collections being very common and large. 

Rovner: Yeah, I’m just noting the irony of Republicans deciding to come out against Big Insurance, and yet this â€” talk about own goals, going against exactly what you’re saying. Let’s make Big Insurance less popular by having people owe money on a payment plan, have a credit card to pay their insurance company back for things that their insurance company basically isn’t covering anymore. Yes, presumably with interest, so Big Insurance will make even more money. 

Well, moving on, it’s been a busy week on the reproductive health front. In Texas, the state’s Republican platform includes a plank calling for women who have abortions to be held criminally liable for murder after another Texas anti-abortion group fought unsuccessfully to have it removed. , the attorney general’s office is sending cease-and-desist letters to out-of-state organizations that offer abortion pills via telehealth. The letters say the companies, including some well-known ones like Plan C and Cambridge Reproductive Health Consultants, must stop all advertising, sale, and delivery of pills to Alabama residents or face potential legal action, including fines of $2,000 per violation. On the other hand, one former abortion provider in the state pointed out that the letters themselves act as an advertisement for the various services that otherwise people might not know anybody about, or where they are. Is this just performative? Or do we think there are going to be real efforts to reach distributors outside states with abortion bans, despite shield laws in the states where those distributors are actually located. 

Weber: It’s probably a mix of both, right? I think that some of it is for press coverage. I did find the former abortion provider saying this is a giant billboard for all these products to be somewhat quite the comment to be made. But it’s true. If you live in Alabama and you went to this woman who is an abortion advocate, she could not tell you where to look these things up online, and now there’s a plethora of media coverage and attorney general’s letters that lead you right to the source. 

Rovner: With their addresses. 

Weber: With their addresses. With their web addresses. And so— 

Rovner: That’s right. 

Weber: It’s an interesting move on all counts. I think it’s just a one and another. I think I don’t think we’re going to just see this from Alabama. 

Stolberg: Yeah, I was going to say this is part of a broader assault by the anti-abortion movement on abortion medication, and in particular mifepristone. And my colleague Pam Belluck and I  about this lawsuit that was brought by the state of Louisiana, which instead of targeting the manufacturers of the pill, they want courts to bar a policy allowing abortion providers to provide or prescribe mifepristone and send it through the mail. This was the policy of the Biden administration’s FDA [Food and Drug Administration]. The Trump administration has said, We’re studying this issue. That study seems to be going on a very long time. Some people suggest it will go on past the midterms, so— 

Rovner: That seems to be the strategy. 

Stolberg: Right. But nonetheless, now that Roe [v. Wade] is gone and states regulate abortion, we are seeing this kind of clash between states about what can happen from one state to another, and I think this is part of that. 

Rovner: Yeah, and as we’ve pointed out multiple times in multiple ways, anti-abortion groups are furious that the administration has not rolled back this ability to send these pills through the mail, because that is why I think we’re seeing less backlash to some of these bans than we would have otherwise, because a lot of these bans are fairly easily evadable by going, having a telehealth appointment with a doctor in another state and getting the pills in the mail. And there’s very little that the ban states, as we’ve discovered, can do to stop it. So they’re sort of trying everything, including these cease-and-desist letters. But this is clearly a fight that’s going to go on unless and until the administration steps in or the courts step in. And we’re, I guess, at this point waiting on both. 

Meanwhile, the Huffington Post has a truly  about women who get positive home pregnancy tests, arrange to travel or take time off from their jobs to get an abortion, only to discover once they get to the clinic that they weren’t actually pregnant at all. It seems most of the false positives are coming from the same brand, Clearblue. And it’s not that the tests are wrong as much as they appear to be too sensitive, likely picking up pregnancies that either end themselves before they’re fully established or picking up the hormone that the tests detect from sources other than an active pregnancy. The most chilling part of the story is at the very end, with one doctor wondering how many women are doing telehealth abortions with pills who were never actually pregnant to begin with. It seems that do-it-yourself healthcare maybe isn’t as foolproof as we’ve made it out to be? 

Weber: I think the story, just â€” first off, everyone should read it, because it’s an incredible deep dive. She managed to uncover multiple complaints that physicians who provide abortion had made to the FDA, which appear to have been undealt with, and it speaks to the tragedy of some of these people that take time out of their day, raise money, travel across state borders to potentially try to end their pregnancy, and realize they don’t have a pregnancy at all, and the emotional trauma of that. But more than anything it speaks to the fact that as abortion rules have become more restrictive, you need to know if you are pregnant earlier than ever, so that’s why a lot of these people are taking these pregnancy tests. And the fact that this is so sensitive, the article does posit that it could be picking up pregnancies that are called chemical pregnancies, which don’t end up becoming actual pregnancies. But the point is that usually if you wanted to go check that, you would go to a doctor and they would check your blood levels and see if they were rising. But a lot of women are afraid to do that in this current environment. And so I feel like it’s a big story of unintended consequences and horror that has unfolded as some of these pregnancy tests are not accurate. 

Rovner: Yeah, and in some cases there are multiple cases. Go ahead, Sheryl. 

Stolberg: Lauren’s words, “unintended consequences,” were just what I was about to say. This is part of a whole panoply of things that were not foreseen by anyone, really, when Roe was overturned. A couple years ago I went to Idaho  how OB-GYNs, especially those who dealt with complicated pregnancies, were fleeing the state because of the restrictive abortion rules. And that was leading family practice doctors, like one I featured, without help in caring for patients with complicated pregnancies. And that, too, is sort of an unintended consequence. And when we were talking before about the abortion pill being sent across state lines, yes, you can evade the bans that way, but it still leaves women without medical care, without follow-up care should something go awry. So a lot of things happened, have flowed from the Dobbs [v. Jackson Women’s Health Organization] case that we didn’t think about at the beginning. 

Rovner: Yeah, one of the things that I’ve written about is it’s not just OB-GYNs who are leaving states or not going to states in the first place, choosing not to do residencies there. 

Stolberg: Right. 

Rovner: But it’s other doctors who are not going to some of the states with bans, because doctors who finish their medical school and residencies tend to be of reproductive age. And they are women, or if they are men and have spouses and want to start families, they’re worried about being in states that don’t have enough doctors if there’s a difficult pregnancy. We’re talking about people who want to get pregnant being a little bit concerned about going to states with abortion bans, because so many of the doctors who would deal with difficult pregnancies have left. So it’s just, it spins out and out and out and out. 

Well, finally, in something from the Trump administration that will please anti-abortion forces, a new grant announcement for a George W. Bush-era program promoting the adoption of frozen embryos left over from IVF [in vitro fertilization] refers to them as, quote, “children who already exist and are in need of a family.” Is this formal announcement the quiet beginning of this administration’s effort to establish fetal personhood in federal law? Or is it just another way to pacify pro-lifers who are still angry over the other administration policies we were just talking about that they don’t like so much? 

Stolberg: Huh. That’s interesting. 

Rovner: Sheryl, you probably remember the “snowflake babies” from the Bush administration. 

Stolberg: OK, I’m actually the person who  on the front page of The New York Times, and then suddenly snowflake babies and their parents were appearing at the White House and on Capitol Hill, it was a group called— 

Rovner: Remind younger people who these snowflake babies are. 

Stolberg: So, there was a group called â€” this was at a time when we were talking about excess embryos left over from in vitro fertilization and what should happen with them, and— 

Rovner: And whether they should be allowed to be used for stem cell research. 

Stolberg: Right. That’s exactly right. And whether they should be allowed to be used for stem cell research. And there was a group called Nightlight Christian Adoptions. They’re a Christian adoption agency, and they had come up with another way, they said, in which infertile couples were literally adopting embryos that were left over from other people’s pregnancy effort attempts. And this was a solution for deeply religious people who did believe that life begins with the embryo and did not want to destroy their embryos and also did not want to have to pay in perpetuity for them to be housed in a lab somewhere. And they called them snowflake babies. And so this is something that George Bush talked about and became enshrined in, I guess, his administration. And, I don’t know. I guess Trump is looking back 20-some-odd years or so, reviving the past. 

Rovner: Well, there has been, there â€” it’s a program that has continued. 

Stolberg: Right. 

Rovner: And there were some adopted embryos even during the Biden administration. But I guess the question that sort of comes up now is, by describing them as already children— 

Stolberg: Yeah. Are they laying the groundwork for this? 

Rovner: â€”are they setting â€” yes, are they laying the legal groundwork? Lauren, you wanted to add something. 

Stolberg: Maybe. 

Weber: I was just curious. Does this lay the legal groundwork that any leftover embryo would then qualify for this program? What if you didn’t want your leftover embryo to go through this? I’m curious. The regulation seems a little unclear. 

Stolberg: I think parents retain the right. Parents retain the right to, they are in essence the property â€” I don’t like to use that word, but â€” 

Rovner: I think legally, though, that’s what they are. 

Stolberg: And legally, embryos created by an infertile couple belong to that couple. And in fact we’ve seen, and my colleague Caroline Kitchener  a lawsuit between a husband and wife who divorced and the woman wanted to implant the embryo and the man did not. And the question was, who quote-unquote “owned” the embryo. But I think that personhood question is really interesting, Julie, and maybe it does establish, in a way, a government recognition of embryos as people that is unprecedented. 

Rovner: Yeah, that’s certainly the concern, that it’s sort of taking it one step further. All right, we’re going to take a quick break. We will be right back. 

We are back. And speaking of issues the administration is trying to tiptoe around, let’s turn to vaccine policy. Last month, the Journal of Toxicology and Environmental Health announced it was retracting a 2010 study that linked the hepatitis B vaccine to an increased risk of autism, because, and I’m quoting here, “due to fundamental methodological flaws the study’s conclusions are unsound.” That was one of the studies cited by Secretary Robert F. Kennedy Jr.’s handpicked advisory committee to change the recommendations for the birth dose of the hep B vaccine. Separately, the journal Toxicology Reports retracted a 2021 study that claimed a link between vaccines and sudden infant death syndrome, also citing methodological errors â€” which is typical, by the way, for why studies are retracted. Yet that retraction led Secretary Kennedy to write a letter to the journal demanding to know why and giving the journal’s editor a deadline of June 26 to respond. What is Secretary Kennedy trying to accomplish here? And will it work or is it just coming off as bullying? 

Edney: I think certainly it’s coming off a little bit as bullying in the sense that this was a decision that the journal made about something that â€” clearly this happens, because it happened with this other study. I think that in Secretary Kennedy â€” and Sheryl, you’ve written about this, and others â€” he does still have a vaccine agenda, whether he’s allowed, or an anti-vaccine agenda, whether he’s allowed to talk— 

Rovner: We’ll get to that in a moment. 

Edney: â€”or not. So I think when he makes these requests, he’s kind of trying to sow doubt into what these other doubts the journal is bringing out. 

Rovner: Lauren, you want to say something. 

Weber: Yeah, I just, I think in general, this is a pattern of actions by Kennedy that several experts have described to me as somewhat hypocritical. He’s attempting to bully a medical journal. He had a big thing about all information should be free during covid, no one should be silenced. And here he is using his platform to potentially change things on that front. And then he also recently issued a quarantine order for someone with hantavirus to stay in Nebraska, which flies in the face of a lot of his “medical freedom” rhetoric during covid. And so I think some of these moves are really interesting because they seem to strike at a contradiction in a lot of the rhetoric he espoused before coming into office. And even on top of the vaccine of it all, I just, I think that’s important context to consider. 

Rovner: And Sheryl, we spent some time last week talking about  about the secretary. But anything you would like to add, please do. 

Stolberg: Yes. I think this is not at all out of character for the secretary. The secretary has long believed that the established medical journals are censoring what he views as legitimate research, i.e. research into the alleged harms of vaccines. And even before he became secretary, when he was running for president, he laid out a very clear agenda in which he said he was going to use government science to lay the groundwork for research that could be used in court against pharmaceutical makers, vaccine makers, and he was also going to take on the medical journals. And in the aftermath of covid, what we saw was also this sort of alternative ecosystem of medical journals growing up, published by these covid contrarian doctors, the Independent Medical Alliance, and other groups. So it wasn’t surprising to me at all that Kennedy went on the offensive against a journal that retracted a study, because he and his allies have long complained that these journals are censoring them. When journals find fault with research that Kennedy likes or supports his views, he doesn’t want to hear about that. 

Rovner: Well, separately, or perhaps not so separately, the Justice Department, on Kennedy’s behalf, is asking for an expedited appeal of a lower-court ruling that found his changes to the childhood vaccine schedule to be, quote, “arbitrary and capricious” and his handpicked vaccine advisory committee members unqualified for their posts. The administration is arguing that because the ACIP [Advisory Committee on Immunization Practices] is currently frozen, the administration can’t act on new vaccines for this fall, including for things like flu, RSV [respiratory syncytial virus], and covid. The , meanwhile, which brought the lawsuit that got the changes stayed, argues that Kennedy can reconstitute ACIP anytime he wants, as long as he follows the federal advisory committee rules and appoints members with vaccine expertise. How might this standoff get resolved? Or does this standoff need to be resolved? There are arguments the FDA has already approved a vaccine for this fall. Insurers have already said they’re going to cover it. So is this, speaking of things that are performative, also performative? 

Stolberg: That’s â€” I think we’re in uncharted territory, Julie. In the past, the CDC’s [Centers for Disease Control and Prevention’s] vaccine advisory committee has met well in advance of every upcoming fall, the flu season, to discuss vaccines to protect the American public and kind of issue their recommendations, which guide what insurers cover. And as a result of this lawsuit, we’re in a place where kind of everything is going on without that central pillar that backs up these decisions. So insurance companies are saying, Yeah, we’ll cover, and the FDA is saying, Yeah, we’ll approve, but there are no experts, outside experts, really thinking through what the right policy is. So, I suppose— 

Rovner: Technically there’s not even an acting director of the CDC, right? Because it went on too long? 

Stolberg: That’s right. 

Rovner: Or is that — so Jay Bhattacharya— 

Stolberg: Well, Jay Bhattacharya is functioning as the acting director but technically he is not the acting director. He is acting in the capacity of director or something like that? 

Rovner: I believe that is the phrase. 

Weber: Who needs senior leadership? 

Rovner: Yeah. It’s all very weird, so— 

Weber: They’re all gone. 

Stolberg: I think it’s a question of, can the government function without this? Yes. Is the government doing the best work for the American people without this system in place? You know, probably not. 

Rovner: Well, meanwhile, more quietly, since the White House ordered Kennedy to back off his more public anti-vaccine efforts, it appears that things are still happening, just a bit more out of public view. Both  and now  are reporting new efforts to study possible ill effects of vaccines at the CDC, the NIH [National institutes of Health], and elsewhere in the department. Quoting from the Washington Post story, by Lena Sun and our podcast panelist Rachel Roubein: “Kennedy’s allies are embedding his agenda in institutions that decide what gets studied, who does vaccine research and how these findings are translated into policy. This could keep the Trump administration’s questioning of vaccines’ safety alive for years to come,” close quote. Could these changes have an even longer-term impact than some of RFK Jr.’s sort of splashier actions that we were just talking about, that could be more easily overturned by an incoming administration? 

Weber: I think absolutely, Julie. I think at the end of the day, too, some of what my colleagues Rachel and Lena found was that they are exploring adding new members to ACIP, that they’re also exploring adding a new Office of Science in the CDC. What does that mean? If is that an Office of Science that Kennedy agrees with? Or is that an Office of Science? These are the questions one has to ask. And then, what kind of long-term ramifications are there for that? Many public health experts say that this continued back-and-forth on vaccines just leaves a lot of people confused and will likely contribute to lower vaccination rates, which could contribute to the continuous rise of preventable, vaccine-preventable, disease. And so there’s a lot of concern that some of this groundwork that’s being laid to underpin some of Kennedy’s long-held beliefs could have a very, very long tail. 

Rovner: Yeah, and of course we’re already seeing cases, not just measles spreading but whooping cough and the kinds of diseases that are preventable with vaccines that people are now not getting for their kids. 

Well, finally this week, two amazing stories related to HHS but not of HHS. One is from The New York Times’ Christina Jewett and Kenneth Vogel, and it’s a  into how lobbying has helped keep the potentially dangerous supplement kratom, if not on pharmacy shelves everywhere, then at least in gas stations and convenience stores around the country. This story has lots of twists and turns over several presidential administrations, but it does seem that Trump 2.0 has been welcoming, shall we say, to the kratom industry, which has in turn given lots of campaign contributions to the administration and its allies. Anna, I see you nodding. 

Edney: Yeah, I loved the story. I thought it was really well done. And, like you said, lots of twists and turns. And there was a really great quote, and I’m not looking at it, but it was along the lines of this being kind of a coin-operated policymaking administration. So, like, you’re â€” if you give enough money. That’s why we’re seeing it’s not your typical, like, Big Pharma putting a lot of lobbying in, right? It’s kratom, it’s flavored vapes, things that kind of you might have considered on the fringes bubbling up to hit. Even the president’s talking about them, and at press conferences that are completely unrelated. So I think that it was a great look at how this industry really kind of got into the administration, and in their view, in the industry view, it’s like, Listen, we’re just paying to be at the table, and we’ve never really been at the table before. But pretty much anyone who can bend the presidency, or someone in his administration, seems to be able to make these inroads that we haven’t seen before, when the product is not proven safe and has been shown to harm people and cause, lead to death. 

Rovner: Yeah. Sheryl, you wanted to add something. 

Stolberg: Yeah. So I was going to say, I lived through this story by my colleagues Ken Vogel and Christina Jewett, and props to them. We’ve been talking about this for a while. I noticed a while back, when  the MAHA [Make America Health Again] movement and Trump, that this company called Botanic Tonics had kind of donated like a million dollars to the MAHA PAC: And I thought: “What is this? Why are these people donating a million dollars to this PAC? Who are they? What is kratom?” And it turned out that my colleague Ken Vogel and also Christina Jewett were kind of already onto this. And the thing that they found to me that was so amazing is that not only this company and the promoters of kratom, which is kind of like an addictive gas station drug â€” it supposedly boosts energy â€” not only were they cultivating Kennedy, but also Markwayne Mullin, who now leads the Homeland Security Department but formerly was a senator, had an investment worth as much as a million dollars in this company, the company of Botanic Tonics. The company’s founder was an energy executive in Mullin’s home state. He’s this odd guy who I think had some sort of brush with the law and changed his name, and it was just this kind of crazy story of influence, like Anna said, kind of, or maybe you said, Julie, on the fringes but coming to the fore. 

Rovner: Yeah, and the original sin here, I think, and someday we’ll go into a deep dive on this, was the 1994 fight in Congress about dietary supplements and— 

Stolberg: The DSHEA [the Dietary Supplement and Health Education Act]. Yes. 

Rover: Right. 

Stolberg: And I’ve thought a lot about this. That has created kind of the, what critics call, the wellness industrial complex, which allows these companies to sell things that are supplements as food, which means they are not regulated as stringently as drugs, can only be regulated after they come to market. And a lot of shady stuff is sold as a result. 

Rovner: Yeah, as I say, it goes back a lot of administrations. All right. Well, finally this week, my other story, and this is my extra credit this week. It’s the second blockbuster in the last three weeks for my Ñî¹óåú´«Ã½Ò•îl Health News colleague Darius Tahir about President Trump’s stock trading. The previous one was about the prescription drug industry. This one is about tobacco. It seems that the teetotaling commander in chief is fine with other legal vices, that he holds more than $1.6 million in stock in tobacco giant Philip Morris, as well as positions in Altria and other tobacco companies. The tobacco industry has been good to him, too, giving millions to Trump-affiliated super PACs. And what has the administration given back? Quoting from the story: “It’s FDA piloted a fast-track program to approve nicotine pouches. It unveiled a program to allow vapes on the market more rapidly, despite resistance from career civil servants and leadership, culminating this year in guidance waving through flavored electronic cigarettes. It cut public health employees focusing on anti-tobacco policy. And it broadened enforcement against illicit e-cigarette, competitors to the big industry players with a financial relationship to Trump,” close quote. This is a big difference from the first Trump administration when it comes to tobacco, isn’t it? My recollection is that they were not quite this welcoming to tobacco from 2017 to 2020. Anna, I see you nodding. 

Edney: Yeah. 

Rovner: You did some work on this. 

Edney: Yeah, well, this was when, the first Trump administration was when Scott Gottlieb was the FDA commissioner, and he was quite anti-tobacco. And we went through this whole scare about kids getting some strange lung disease from vaping. And there were a lot more restrictions that â€” and less approvals, or clearances, whatever you want to call the tobacco side of FDA. So, I think it’s been a complete turnaround, where this time around the Trump White House would prefer to run roughshod over the FDA and get what they want for the tobacco industry, because they’re getting a lot of money from them. 

Rovner: Yeah, and props to Darius for connecting all of the dots. Lauren, you want to add something? 

Weber: Yeah. Let’s go back to  about Trump meeting over cheeseburgers with the tobacco guys at the White House. I think Darius’ piece lays out the money that maybe is hanging out there. But props to Darius for having two of these quite good stories looking at these conflicts of interest. 

Stolberg: Yes, during the Trump administration, the first Trump administration, Alex Azar, his health secretary, pressed Trump to take some sort of action restricting vaping, and Trump got really mad at Azar about it, and he complained privately and yelled at Azar, saying to him, You’re costing me votes, because the MAGA crowd likes vaping. This was recounted in a book. I’m pretty sure it was Phil Rucker and Carol Leonnig’s book, the two Washington Post reporters. So, Trump was, maybe he wasn’t this aggressive in supporting the tobacco industry, but then there’s this added component to it, which is that he thinks MAGA [the Make America Great Again movement] likes vaping. And he was yelling at Azar, saying: You’re costing me votes. You’re going to cost me this election. I’m sorry I ever did this. 

Rovner: Oh, we will see how this one plays out. All right, that’s this week’s news. Now, we’ll play my interview with Michael Cannon and Liz Fowler, and then we’ll come back and do our extra credits. 

I am pleased to welcome to the podcast two people who have taught me a lot over my years covering health policy. And full disclosure, I consider both of them friends. Liz Fowler is a distinguished scholar at the Johns Hopkins School of Public Health. During the Biden administration, she ran the Center for Medicare and Medicaid Innovation, an agency created by the Affordable Care Act, which she helped write as the chief health counsel on the Senate Finance Committee and implement as a senior official in the Obama administration. Michael Cannon is the director of health policy studies at the Cato Institute, a libertarian think tank here in Washington, D.C., and has spent most of the past 16 years trying to get the Affordable Care Act repealed after vehemently and almost successfully blocking its passage. Yet this unlikely pair is on a new mission, pointing out why the first step in the next round of health reform should be to get rid of something called the employer health insurance tax exclusion, which we will explain in a minute. Liz and Michael, welcome. Thanks for doing this. 

Liz Fowler: Thanks for having us. 

Michael Cannon: Thanks for having me. 

Rovner: So for most people this would be a hard question, but you guys have been on the circuit, so one of you give me the 30-second explanation of what the employer tax exclusion is and why it exists in the first place. 

Cannon: So when Congress passed the income tax in 1913, there was no such thing as health insurance, really. So they gave no thought to the question of if an employer provides health insurance to its employees, should that be subject to the tax. The Treasury bureaucrats, when someone presented that idea, said: This is really hard. We don’t know. We’ll just say we’ll exclude that from the tax base, so we won’t tax compensation in the form of employee health insurance. That was in the 1920s. In the 1940s â€” so that gave employer health insurance a boost. In the 1940s there were wage and price controls that gave it a further boost, because employer health insurance was exempt from those wage controls, so it gave employers a way to compete. But it’s really that tax exclusion that is responsible for the fact that more than half of U.S. residents have health insurance through an employer, because it works like this: If your employer gives you a dollar of cash, you have to pay federal income and payroll taxes on that, and you’re left with, on average, at the margin, 66 cents. The federal government takes a third of it. But if the employer gives you that same dollar as health insurance, then you get a dollar’s worth of health insurance. So you can see how this sort of distorts the prices, the after-tax prices that people face, when they’re choosing between more cash wages and spending that money on other things versus spending money on health insurance, employer-sponsored health insurance. And so people more often buy employer-sponsored health insurance, they demand more of it than they would otherwise, and this also lets employers end up controlling about, for the average family with employer coverage, $20,000 of the worker’s earnings. And all of these effects end up increasing spending on employer-sponsored insurance and increasing prices for health insurance, and the fact that it’s encouraging a form of insurance that disappears when you change jobs means it’s creating gaps in health insurance coverage. So, for decades, economists have said: Hey, this is a real problem. We need to solve this. And I would argue that it is really the reason that Congress wanted to enact the Affordable Care Act in the first place, to fill some of the gaps that this exclusion created. 

Rovner: So, Liz, originally this was considered a good idea. It’s like, Oh, we’re encouraging the creation of a new fringe benefit for workers: health insurance. When did it outlive its usefulness? 

Fowler: That’s a great question. I think our workforce is very different. Employment is very different than it was back in the 1940s and ’50s, when my parents or grandparents had the same job for decades and they all got health insurance through their workplace. That has eroded over time. I don’t know exactly, Michael probably knows exactly, what the trajectory has been. We’re now down to about 50% of employees receiving healthcare through their workplace. But people are employed in different ways than they used to. I’ve had several jobs throughout the course of my career. People don’t stay in the same job for decades anymore. And people piece together work in ways that they didn’t. Maybe they have more than one job. Maybe they have a part-time job over here and a part-time job over there. This tying health coverage to employment, I think, has become, is starting to become, anachronistic. And I think for me, in particular, watching the debate over HR1 [congressional Republicans’ One Big Beautiful Bill Act] and trying to tie Medicaid coverage to employment or community engagement brought up this whole question of: Why do we tie health benefits to work in 2026? 

And so that’s part of why I wanted to revisit this policy question, which we tried to tackle in the Affordable Care Act and didn’t get very far. And the sort of the distorted version that we included in the law, the “Cadillac tax,” was repealed with a bipartisan â€” what, almost unanimous â€” vote. So I think it’s time to sort of ask these questions again. It’s a very expensive part of the tax code. It’s one of the largest if not the largest tax expenditure in the U.S. tax code, to â€” what â€” close to upwards of $300 billion a year that this benefit provides to a group of workers who are more likely to get health coverage and more likely to get generous health coverage, and at the higher end of the income scale more likely to see a larger benefit. So all of these questions, I think, are ripe for revisiting. 

Rovner: So one of my most vivid memories from covering the Affordable Care Act was a roundtable hearing that the Senate Finance Committee had with all of these economists from across the spectrum talking about how to pay for the Affordable Care Act. And I remember â€” I actually went and looked this back up â€” one of the senators asked what would be the best way to pay for it And one by one by one, these witnesses, eminent health economists from literally every part of the political spectrum, says you need to do something about the employer tax exclusion, literally every one. And obviously, as you said, Liz, they tried. There was sort of the beginnings of this that we called the Cadillac tax, and it was ultimately repealed. Why is this so hard if it, as you guys point out, it doesn’t make very much sense anymore? 

Cannon: Well, it creates a lot of benefits for a lot of very powerful groups. It benefits the health industry because the government is effectively penalizing workers for every dollar of their earnings that they don’t spend on health insurance and medical care. It benefits large employers because they can spread the administrative costs of providing health insurance over a larger number of workers, which means they can take the savings and offer higher salaries than their smaller competitors do, which gives them an advantage in the labor market. So between those two groups right there, you have a very powerful coalition that has blocked, defanged, repealed every effort to try to limit or reform the exclusion, and there have been a lot. Presidents [Ronald] Reagan, [Bill] Clinton, Bush the younger, [Barack] Obama. Presidential candidate John McCain famously tried to reform the tax exclusion, and Barack Obama really, I would say, demagogued that that proposal. I didn’t favor that proposal either, but McCain’s policy director says he still has nightmares about the attack ads that Obama ran. And it’s because of the fear those â€” it’s not just that people have a financial interest in preserving this huge tax break for employer-sponsored insurance. It’s the fear that those special interest groups are able to demagogue, to play upon that people with employer-sponsored health insurance who have expensive medical conditions will lose their coverage and be left with nothing. 

Now I am not a fan of the Affordable Care Act, or what I now call Obamacare. We’ve discussed this. Liz and I do not see eye to eye on that one. I would repeal it tomorrow if I could. But if it is in place, then it actually helps with that problem. It helps with this fear that people would, if we reform the tax exclusion for employer-sponsored health insurance, that people will lose their coverage. There’s a lot of evidence to suggest that employer coverage will stick around for the vast majority of workers, but for those for whom it does not, the Obamacare exchanges are there as a sort of safety net, so that should make the politics a little bit easier. 

Rovner: So, obviously, the Cadillac tax didn’t work. What would be a step that would, that possibly could happen, that we could take to start to move away from this? 

Fowler: Well, one of the things that we initially tried to do in the Senate Finance Committee, in an early version of the Affordable Care Act, was to cap the exclusion. So you can say above the 80th percentile, or the 85th percentile, or something lower â€” below that will still exclude it from income. But if you get very generous coverage, very expensive coverage, we’ll start to— 

Rovner: Like Cadillac-type coverage? 

Fowler: Well, but the difference is we’ll include that as income for the worker. I think that’s where we ran into problems and political challenges. I think there was some reluctance to tax individuals, and Oh, that looks like a new tax increase. So the Cadillac tax was, OK, let’s instead put that tax on employers and insurers instead of the workers, and that became very unpopular with, as you can imagine, the employers and the insurers. So it makes sense why it’s been a tortured history and it’s been hard to get done. I think one of the reasons, and Michael talked about this, why it was a little bit scary to go down this road in the past, because you didn’t know where people would get their health coverage if you tried to change the employer structure we have now. But now there is a place. There are marketplaces. And the bigger that risk pool, and the more people are part of it, I think the more affordable and the more stable it becomes over the long run. 

Additionally, I’m not sure employers want to stay in this business. I think it’s becoming very unsustainable to continue to provide very costly insurance that, where the cost is rising at quite a rapid pace, certainly higher than wages, and is eating more and more of a household’s income over time. And so I think if we really lift up the hood and start looking at the potential impacts, the opportunities, the options, the policy options on the table, and have an honest debate about what this could look like, I think there would be more openness perhaps now than there was back in 2010. 

Rovner: Well, thank you both for kicking this off. Michael Cannon. Liz Fowler. This was great. 

OK, we’re back. It’s time for our extra credit segment. That’s where we each recognize a story we read this week we think you should read, too. Don’t worry if you miss it. We will post the links in our show notes on your phone or other mobile device. I’ve already done mine this week. Anna, why don’t you go next? 

Edney: Sure. Mine is in Politico Magazine. One of the co-authors is our podcast colleague Alice Miranda Olstein. It’s “.” And I thought it was a really smart look at something Trump had said, again talking about things he did in his first administration, that we could end the HIV epidemic in the U.S. by 2030 and put policies in place to try to get there. And Alice and her colleague talked to a lot of top former administration people to look at what happened, and it seems to be not one single lightning bolt but sort of that there were all these other policies around Trump 2.0 that â€”DOGE [the Department of Government Efficiency] and other things that cut a lot of this type of funding â€” that created this situation we’re in now, where no one, except maybe Trump himself, thinks we’re going to meet that 2030 goal. 

Rovner: Yeah, a lot of differences between Trump 1.0 and Trump 2.0, as we’ve been discussing. Sheryl. 

Stolberg: So my extra credit is “Tennessee Pharmacies Sell Potent Ivermectin, Led by Anti-Vaccine Doctor Who’s Taken ‘Bucketloads.’” And this appears in Ñî¹óåú´«Ã½Ò•îl Health News. It’s by Brett Kelman and Rachana Pradhan. And what I love about this story is it talks about how ivermectin, this drug that actually is a Nobel Prize-winning, generally safe drug approved for treating parasitic diseases in humans, has become kind of this ideological touchstone in our society. And it started during the covid pandemic. And now we’re seeing where people on the right and other influencers were pushing it as a treatment for covid without evidence that it worked, and in fact despite FDA warnings that taking too much of it could cause harm. And now it’s sold over the counter in Tennessee, and Marjorie Taylor Greene was promoting it as a treatment for hantavirus, and— 

Rovner: Which it’s not. 

Stolberg: Which it’s not. Exactly. And it’s just sort of taken on this life in our culture, and I guess I just feel like this story sort of reflects something about this cultural moment and how we are addressing medicine and healthcare as a society, 

Rovner: Indeed. Lauren. 

Weber: So I chose a story titled “,” by Benjamin Mazer in The Atlantic. And it posits this basically interesting thesis, which is that a lot of these chatbots that people use, and even doctors use, are not really regulated by the FDA, and so you kind of are interacting with AI in any sort of healthcare setting, whether you know it or like it or not, and whether those tools are up to snuff or not. And the ending of the article is really the most alarming, because it basically is like: Is this like Uber and Lyft, where Uber and Lyft just disrupted the market so much that we all had to get on board without regulating it more, and that that’s what could happen to hospitals? And I think it’s a really interesting and fascinating question of: What is the role of government regulation when it comes to these AI tools being used in a hospital setting? And are they anywhere near equipped to catch up with what’s going on right now? 

Rovner: Yeah, it’s a really thoughtful piece. All right. That is this week’s show. Thanks to our editor, Emmarie Huetteman, and our producer-engineer, Francis Ying. We also had production help this week from Taylor Cook. A reminder: What the Health? is available on WAMU platforms, the NPR app, and wherever you get your podcasts, as well as, of course, kffhealthnews.org. Also, as always, you can email us your questions or comments. We’re at whatthehealth@kff.org, or you can find me still on X, , and on Bluesky, . Sheryl, where are you on social media these days? 

Stolberg: I am @SherylNYT  and . 

Rovner: Anna. 

Edney: @annaedney  and . 

Rovner: Lauren. 

Weber: @LaurenWeberHP â€” the HP is for “health policy” —  and . 

Rovner: We’ll be back in your feed next week. Until then, be healthy.