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Because of Texas Abortion Law, Her Wanted Pregnancy Became a Medical Nightmare

Because of Texas Abortion Law, Her Wanted Pregnancy Became a Medical Nightmare

Elizabeth and James Weller at their home in Houston two months after losing their baby girl due to a premature rupture of membranes. Elizabeth could not receive the medical care she needed until several days later because of a Texas law that banned abortion after six weeks. (Julia Robinson for NPR)

New, untested abortion bans have made doctors unsure about treating some pregnancy complications, which has led to life-threatening delays and trapped families in a limbo of grief and helplessness.

Elizabeth Weller never dreamed that her hopes for a child would become ensnared in the web of Texas abortion law.

She and her husband began trying in late 2021. They had bought a house in Kingwood, a lakeside development in Houston. Elizabeth was in graduate school for political science, and James taught middle-school math.

The Wellers were pleasantly surprised when she got pregnant early in 2022.

In retrospect, Elizabeth said, their initial joy felt a little naive: 鈥淚f it was so easy for us to get pregnant, then to us it was almost like a sign that this pregnancy was going to be easy for us.鈥

Things did go fairly smooth at first. Seventeen weeks into the pregnancy, they learned they were expecting a girl. Elizabeth also had an anatomy scan, which revealed no problems. Even if it had, the Wellers were determined to proceed.

鈥淲e skipped over the genetic testing offered in the first trimester,鈥 Elizabeth said. 鈥淚 was born with a physical disability. If she had any physical ailments, I would never abort her for that issue.鈥

Elizabeth thought of abortion rights in broad terms: 鈥淚 have said throughout my life I believe that women should have the access to the right to an abortion. I personally would never get one.鈥

And at this particular point in her life, pregnant for the first time at age 26, it was still somewhat abstract: 鈥淚 had not been put in a position to where I had to weigh the real nuances that went into this situation. I had not been put in the crossroads of this issue.鈥

But in early May, not long after the uneventful anatomy scan, the Wellers suddenly arrived at that crossroads. There they found themselves pinned down, clinically and emotionally, victims of a collision between standard obstetric practice and the rigid new demands of Texas law.

It was May 10, 2022. Elizabeth was 18 weeks pregnant. She ate a healthy breakfast, went for a walk outside, and came back home.

In the nursery upstairs, they had stashed some baby clothes and new cans of paint. Down in the kitchen, images from recent scans and ultrasounds were stuck to the fridge.

Elizabeth stood up to get some lunch. That鈥檚 when she felt something 鈥渟hift鈥 in her uterus, down low, and then 鈥渢his burst of water just falls out of my body. And I screamed because that鈥檚 when I knew something wrong was happening.鈥

Her waters had broken, launching her into what she called a 鈥渄ystopian nightmare鈥 of 鈥減hysical, emotional and mental anguish.鈥 She places the blame for the ensuing medical trauma on the Republican legislators who passed the state鈥檚 anti-abortion law; on Texas Gov. Greg Abbott, who signed it; and on the inflamed political rhetoric, which Elizabeth said sees abortion 鈥渁s one thing, a black-and-white issue, when abortion has all of these gray areas.鈥

State Abortion Laws Are Complicating Other Types of Obstetric Care

Elizabeth鈥檚 pregnancy crisis began 鈥 and ended 鈥 weeks before June 24, when the U.S. Supreme Court struck down the federal right to abortion in its Dobbs v. Jackson Women鈥檚 Health Organization ruling.

But the Wellers and 28 million other Texans had already been living under a de facto abortion ban for eight months, since September 2021. That鈥檚 when a new  banned all abortions after embryonic or fetal cardiac activity is detected 鈥 usually at about six weeks of pregnancy. Since then, thousands of women have  to obtain abortions in other states.

Today, abortion is  in Texas under a  that the state鈥檚 attorney general, Ken Paxton,  after Roe v. Wade was overturned. Another ban, a so-called 鈥溾 passed by Texas in 2021, is expected to go into effect within weeks.

The crisis the Wellers endured is emblematic of the vast and perhaps unintended medical impacts of the criminalization of abortion in Republican-led states. The new abortion bans 鈥 or the old laws being resurrected in a post-Roe world 鈥 are rigidly written and untested in the courts. Many offer no exemptions for rape, incest, or fetal anomalies.

But the most confusing development involves the exemptions that exist for the woman鈥檚 life or health, or because of a 鈥渕edical emergency.鈥 These terms are left vague or undefined.

The result has been disarray and confusion for doctors and hospitals in multiple states, and  for patients facing obstetric conditions such as ectopic pregnancies, incomplete miscarriages, placental problems, and premature rupture of membranes.

鈥淚t鈥檚 terrible,鈥 said , a professor of maternal-fetal medicine at Northwestern University鈥檚 Feinberg School of Medicine. 鈥淭he care providers are treading on eggshells. They don鈥檛 want to get sucked into a legal morass. And so they don鈥檛 even know what the rules are.鈥

鈥業 Need You to Tell Me the Truth鈥

James rushed home from work and drove Elizabeth to the nearby , part of the Houston Methodist hospital system. An ultrasound confirmed she had suffered , which affects about 3% of pregnancies.

A doctor sat down and told her: 鈥淭here鈥檚 very little amniotic fluid left. That鈥檚 not a good thing. All you can do now is just hope and pray that things go well.鈥

The staff remained vague about what would come next, Elizabeth recalled. She was admitted to the hospital, and later that night, when her obstetrician called, she begged her for information.

鈥淚 told her, 鈥楲ook, doctor, people around me are telling me to keep hope. And they鈥檙e telling me to think of the positives. But I need you to tell me the truth, because I don鈥檛 think all the positive things that they鈥檙e telling me are real. I need you to give me the facts.鈥欌

The facts were grim. At 18 weeks, the watery, protective cushion of amniotic fluid was gone. There was still a heartbeat, but it could stop at any moment. Both the fetus and Elizabeth were now highly vulnerable to a , among other risks.

A frame holds a sonogram, a card with small footprints, and a card that says "Gone... but not forgotten."
Elizabeth and James Weller keep remembrances of their baby in a picture frame at home. (Julia Robinson for NPR)

The OB-GYN, who said she could not speak to a reporter for this article, laid out two options, Elizabeth said.

One was to end the pregnancy; that鈥檚 called 鈥渁 termination for medical reasons.鈥 The other option is called 鈥渆xpectant management,鈥 in which Elizabeth would stay in the hospital and try to stay pregnant until 24 weeks, which for a fetus is considered the beginning of viability outside the womb.

Outcomes from expectant management vary greatly depending on when the waters break. Later in pregnancy, doctors can try to delay delivery to give the fetus more time to develop while warding off infection or other maternal complications such as hemorrhage.

But when membranes rupture earlier in pregnancy, particularly before 24 weeks, the chance of a fetus surviving plummets. One reason is that amniotic fluid plays a key role in fetal lung development. For a fetus at 18 weeks, the chance of survival in that state is almost nonexistent, according to Peaceman: 鈥淭his is probably about as close to zero as you鈥檒l ever get in medicine.鈥

Fetuses that do survive a premature delivery can die soon after birth. If they survive, they may experience  with their lungs or strokes, become blind, or develop cerebral palsy or other disabilities and illnesses.

For the women, expectant management after premature rupture of membranes comes with its own health risks.  showed they were four times as likely to develop an infection and 2.4 times as likely to experience a postpartum hemorrhage, compared with women who terminated the pregnancy.

In some cases, the infection can become severe or life-threatening, leading to sepsis, a hysterectomy, or even death. In 2012, a after her waters broke at 17 weeks and doctors refused to give her an abortion. The case spurred a movement that led to the overturning of Ireland鈥檚 abortion ban in 2018.

A Clinical Battle Begins Behind the Scenes

Although distraught and heartbroken at this news, Elizabeth forced herself to think it through.

After she talked with James, they agreed they should end the pregnancy. The risks to Elizabeth鈥檚 health were simply too high.

To Elizabeth, termination also felt like the most merciful option for her fetus. Even with the slim chance of survival to 24 weeks, the newborn would face intense physical challenges and aggressive medical interventions.

鈥淵ou have to ask yourself, would I put any living thing through the pain, and the horrors, of having to try to fight for their life the minute that they鈥檙e born?鈥

The next day, Elizabeth鈥檚 OB-GYN went to the hospital to arrange for the procedure. Right away, she ran into obstacles because of the Texas law. A fight began, which Elizabeth first became aware of as her doctor paced the hall outside her room, talking on her phone.

鈥淚 remember hearing her, from my room, speaking loudly about how nothing is being done here.鈥

After one conversation, the doctor returned to her bedside.

鈥淚 can tell that she鈥檚 been beat down, because she has been trying to fight for me all day, advocating on my behalf,鈥 Elizabeth said. 鈥淎nd she starts to cry, and she tells me: 鈥楾hey鈥檙e not going to touch you.鈥 And that 鈥榶ou can either stay here and wait to get sick where we can monitor you, or we discharge you and you monitor yourself. Or you wait till your baby鈥檚 heartbeat stops.鈥欌

It was because of the state law that forbids termination of a pregnancy as long as there is fetal cardiac activity. The law, which remains in effect, does contain one exception 鈥 for a 鈥渕edical emergency.鈥 But the statute doesn鈥檛 define that term. No one really knows what the legislature meant by that, and doctors are afraid of overstepping.

A Wait for Fetal Death or Her Own Encroaching Illness

To Elizabeth, it seemed obvious that things were deteriorating. She had cramps and was passing clots of blood. Her discharge was yellow and smelled weird. But hospital staffers told her those weren鈥檛 the right symptoms yet. The signs of a severe infection in her uterus would include a fever of 100.4 degrees and chills. Her discharge had to be darker. And it had to smell foul, really bad. Enough to make her retch.

Houston Methodist declined to comment on the specifics of Elizabeth鈥檚 care, except to say that it follows all state laws and that a medical ethics committee sometimes reviews complex cases.

To Peaceman at Northwestern, it sounded like the hospital鈥檚 clinicians were using the most common  of chorioamnionitis as a guideline. If Elizabeth exhibited enough of them, he said, then they could document the encroaching infection and therefore terminate the pregnancy under the law鈥檚 鈥渕edical emergency鈥 clause.

Elizabeth found this maddening.

鈥淎t first, I was really enraged at the hospital and administration,鈥 she said. 鈥淭o them, my life was not in danger enough.鈥

The conundrum became painfully, distressingly clear: Wait to get sicker, or wait until the fetal heartbeat ceased. Either way, she saw nothing ahead but fear and grief 鈥 prolonged, delayed, amplified.

鈥淭hat鈥檚 torture to have to carry a pregnancy which has such a low chance of survival,鈥 said Peaceman. 鈥淢ost women would find it extremely difficult and emotionally very challenging. And that鈥檚 a big part of this problem, when we as physicians are trying to relieve patients鈥 suffering. They鈥檙e not allowed to do that in Texas.鈥

Later on, Elizabeth said, she realized that her anger at Methodist was misplaced. 鈥淚t wasn鈥檛 that the Methodist hospital was refusing to perform a service to me simply because they didn鈥檛 want to, it was because Texas law 鈥 put them in a position to where they were intimidated to not perform this procedure.鈥

Under Texas law, doctors can be sued by almost anyone for performing an abortion.

An Agonizing Wait at Home

Elizabeth chose to go home rather than wait to get sick at the hospital.

But she was barely out the door, still in the parking lot, when her phone rang. It was someone else at Methodist, perhaps a clerk, calling to go over some paperwork.

鈥淚t鈥檚 this woman who was saying, 鈥楬i Miss Weller, you鈥檙e at the 19-week mark. We usually have our moms register for delivery at this point. So I鈥檓 here to call you to register for your delivery on Oct. 5, so I can collect all your insurance information. How are you doing, and are you excited for the delivery?鈥欌

Elizabeth knew it was just a terrible coincidence, an awful bureaucratic oversight, and yet it drove home to her how powerless she was, how alone, in that vast medical system of rules, legal regulations, and revenue.

鈥淚 just cried and screamed in the parking lot,鈥 she recounted. 鈥淭his poor woman had no idea what she was telling me. And I told her, 鈥楴o, ma鈥檃m. I鈥檓 actually headed home right now because I have to await my dead baby鈥檚 delivery.鈥 And she goes, 鈥業鈥檓 so sorry, I鈥檓 so sorry, I didn鈥檛 know.鈥欌

For Elizabeth, that tragic conversation was just 鈥渢he beginning of the hell that was going to ensue鈥 for the rest of the week.

A man and a woman sit at a table where baby onesies are piled.
Elizabeth and James look at clothes that were meant for their baby, whom they lost in the second trimester of pregnancy. (Julia Robinson for NPR)

The next day, a Thursday, she started throwing up. But when she called, they told her nausea and vomiting weren鈥檛 among the symptoms they were looking for.

On Friday, when she woke up, she was still passing blood and discharge, still feeling sick, and feeling strange things in her uterus. She felt lost and confused. 鈥淚 was just laying in bed, you know, wondering: Am I pregnant, or am I not pregnant? And it鈥檚 this stupid, like, distinction that you鈥檙e just making in this grief. You鈥檙e trying to understand exactly what鈥檚 going on. Because at this point, I鈥檓 in survival mode. I鈥檓 trying to understand. I鈥檓 trying to mentally survive this.鈥

How the Law Led to Medical Trauma

Elizabeth鈥檚 experience amounts to a kind of medical trauma, which is layered on top of the grief of pregnancy loss, said , a psychotherapist specializing in the perinatal period and the chief clinical officer of  in Austin, Texas.

鈥淚t鈥檚 just really unimaginable to be in a position of having to think: How close to death am I before somebody is going to take action and help me?鈥

Losing a pregnancy is a particular kind of loss, one that tends to make other people 鈥 even health professionals 鈥 uncomfortable. All too often, Cavazos said, patients are told to get over it, move on, try again. These dismissals only increase the sense of isolation, stigma, and shame.

And now the Texas abortion law has created an additional bind, Cavazos said.

In a sudden obstetric emergency, a termination might be the least risky option, clinically. But now, Cavazos said, 鈥測our medical provider says that it鈥檚 illegal and they can鈥檛 provide it 鈥 and not only can they not provide it, but they can鈥檛 talk to you about it.鈥

鈥淚t might even be scary for you to reach out and seek support 鈥 even mental health support,鈥 she added. 鈥淏ecause the state has made it very clear that if you talk about this, you鈥檙e vulnerable to being sued.鈥

An Unseen Panel Weighs the Case

As Friday dragged on, Elizabeth started wondering if the heartbeat had stopped. She called her doctor and begged to get in. At the office, her OB-GYN turned down the ultrasound volume so they wouldn鈥檛 have to hear.

鈥淚 said, 鈥榃ell, is there a heartbeat still?鈥 And she says, 鈥榊es. And it鈥檚 strong.鈥欌

鈥淚t was devastating to hear that,鈥 Elizabeth said. 鈥淣ot because I wanted my baby to die, but because I needed this hell to end. And I knew my baby was suffering, I knew I was suffering, I knew my husband was suffering.鈥

Her doctor said she had been calling other hospitals, but none of them would help. She said Houston Methodist had convened an ethics panel of doctors, but her doctor didn鈥檛 seem very optimistic.

A woman sits at a table where a small urn is placed.
Elizabeth touches the urn of her daughter. She recalls looking at her baby’s little hands and crying. “I told her ‘I’m so sorry I couldn’t give you life. I’m so sorry,'” Elizabeth says.(Julia Robinson for NPR)

Right there in the office, James pulled out his cellphone and started looking for flights to states with less restrictive abortion laws. Maybe they could get the abortion in Denver or Albuquerque?

鈥淗e and I kept telling each other, 鈥榃hat is the whole point of the Hippocratic oath to do no harm?鈥欌 Elizabeth said. 鈥淎nd yet we鈥檙e being pulled through this.鈥

Back at home, the Wellers got more serious about their travel plans and started booking tickets.

Then Elizabeth felt another sudden, forceful gush of fluid leave her body. The color was darker, and the odor was foul. Enough to make her retch.

When they called the doctor鈥檚 office back, they were told to go straight to the emergency room. And quickly. They now had some of the symptoms they needed to show the infection was getting worse.

Before they drove off, Elizabeth paused to do something. She took a swipe of the new discharge and placed the toilet paper in a Ziploc bag to carry with her.

It was like an evidence bag. She was through with being dismissed, being told to wait. There was an infection, and she did need treatment. She had the proof.

鈥淏ecause I didn鈥檛 want anybody to tell me they did not believe me,鈥 she said. 鈥淎nd if they didn鈥檛 believe me, I was going to show it to them and say, 鈥淟ook! You open it. You smell it yourself. You鈥檙e not going to tell me that what I鈥檓 experiencing isn鈥檛 real again.鈥欌

She never had to use that bag. Because once they got back to the hospital, while they were checking in at the emergency room, her doctor called.

The ethics panel had reached a decision, the doctor told them. Unnamed, unknown doctors somewhere had come to an agreement that Elizabeth could be induced to terminate the pregnancy that night.

As Elizabeth recalled hearing, one particular doctor had argued her case: 鈥淭hey found a doctor from East Texas who spoke up and was so patient-forward, so patient-advocating, that he said, 鈥楾his is ridiculous.鈥欌

James and Elizabeth cried out their thanks to the doctor. They stood up in the middle of the ER and embraced.

鈥淲e shouldn鈥檛 have been celebrating,鈥 Elizabeth said. 鈥淎nd yet we were. Because the alternative was hell.鈥

A Mournful Birth

Elizabeth was induced late Friday night, and the labor became painful enough that she had to get an epidural. Midnight came and went in a blur. On Saturday, May 14, at about 2 a.m., she gave birth. Their daughter, as expected, was stillborn.

鈥淟ater, they laid down this beautiful baby girl in my arms. She was so tiny. And she rested on my chest. 鈥 I looked at her little hands, and I just cried. And I told her, 鈥業鈥檓 so sorry I couldn鈥檛 give you life. I鈥檓 so sorry.鈥

When Roe v. Wade fell in June, Elizabeth鈥檚 pain and anger surged again.

鈥淵ou know they paint this woman into being this individual that doesn鈥檛 care about her life, doesn鈥檛 care about the life of the children she creates or whatever, and she just recklessly and negligently goes out and gets abortions all willy-nilly, left and right,鈥 she said. 鈥淎bortions are sometimes needed out of an act of an emergency, out of an act of saving a woman鈥檚 life. Or hell 鈥 it honestly it shouldn鈥檛 even get to the point where you鈥檙e having to save a woman鈥檚 life.鈥

The Wellers do want to try again, but first they need to get to a 鈥渕entally healthier place,鈥 Elizabeth said. 鈥淚t鈥檚 not just the fear that it could happen again, but also the added fear of, 鈥榃hat if it happens again and I can鈥檛 get help?鈥欌

鈥淟et鈥檚 say I do have to go through this situation again,鈥 she said. 鈥淎nd how can I be so sure I鈥檓 not going to get too sick to the point where that鈥檚 it 鈥 now you can鈥檛 have kids. It is a horrible gamble that we are making Texas women go through.鈥

Elizabeth has been sharing her story and has found that whatever the political affiliation of the listener, they all agree her experience was horrible.

Now she wants those sentiments translated into action: 鈥淲e live in a culture that advocates small government, and yet we are allowing states, we are allowing our Texas state government, to dictate what women do with their own bodies and to dictate what they think is best, what medical procedures they think is best for them to get.鈥

In the medical profession, doctors will continue to grapple with the new legal restrictions and the resultant dilemmas in obstetric care, said Peaceman.

鈥淚t鈥檚 going to take a while before 鈥 the medical community comes to some kind of consensus on where you draw this line and where you say enough is enough.鈥

鈥淏ecause that doesn鈥檛 really exist right now,鈥 he added. 鈥淎nd if you leave it up to individuals, you鈥檙e going to get uncertainty and people unwilling to make decisions.鈥

This story is part of a partnership that includes  and KHN.