SPARTANBURG, S.C. 鈥斕齇n a hot summer day last month, Sydney, 15, and Laney, 8, were enjoying their last two weeks of freedom before school started. The sisters tried to do flips over a high bar at a local playground.
鈥淵ou鈥檝e got to pull your hips into the bar, like you鈥檝e got to kick up like that,鈥 explained their mother, Selena.
鈥淚 tried to kick! I did this 鈥斕齳ou told me not to stick out,鈥 said Laney indignantly.
Both girls have been diagnosed with mental illnesses 鈥斕齋ydney with bipolar disorder and Laney with a similar illness called disruptive mood dysregulation听disorder. The family asked that their last name not be used to protect the girls鈥 privacy.
School has been a real challenge for them. That鈥檚 not unusual for the 1听in 5听children with a mental illness. They often suffer anxiety, difficulty focusing and social challenges. Half of them , in part because many schools don鈥檛 manage to meet their needs.
Selena has spent the past eight years trying to get the girls the resources to help them succeed. Like a lot of parents of kids with mental health issues, she鈥檚 had to be her children’s biggest advocate.
鈥淚t鈥檚 definitely a journey. It wasn鈥檛 easy,鈥 she said, even though she鈥檚 a school guidance counselor herself.
Sydney describes class as 鈥渂oring, distracting. It鈥檚 hard to pay attention. It’s overwhelming.鈥 She struggles to focus or process information, which makes her so anxious and depressed that she often has to leave school in the middle of the day.
She wants to be a rock star like Courtney Love. Every so often she pretends to take drag from a bubble gum cigarette. But she鈥檚 an extremely sensitive kid, and school has been a painful experience.

Selena looks on while her daughter Sydney, 15, plays on a climbing structure at a park near their home. (Jenny Gold/KHN)
鈥淚 used to cry the night before, because I didn鈥檛 want to go to school,鈥 she said.
Laney on the other hand is a ball of chaotic energy. At school, she often gets frustrated and acts out. Sometimes, she is sent home.
Schools do not all screen students for mental health issues, and the practice varies widely across states. Even if students are successfully identified, many areas lack the community-based mental health treatment options that would be needed to help them. Just such as depression or bipolar disorder receive treatment services. In 2014, the 听$48 million in new grants to support teachers, schools and communities in recognizing and responding to mental health issues. Still, many students鈥 mental health problems continue to go unidentified and untreated.
When Selena first noticed the girls were having problems, she took them to the doctor. Sydney started taking medication at the age of 7听and Laney at just 4, but it wasn鈥檛 a quick fix.
鈥淭he brain is complex,鈥 said Selena. 鈥淚t’s not like you just take a medicine and it fixes it.鈥 It took years to get the girls鈥 diagnoses and prescriptions right.
Selena said she needed to educate teachers about her daughters鈥 illnesses. 鈥淚 really tried to do my homework. I did a lot of research. Obviously I talked to parents online in a support group,鈥 she said.
Schools are starting to better recognize that mental health is key to academic and social success, said Darcy Gruttadaro, director of advocacy at the National Alliance on Mental Illness, a grassroots organization headquartered outside Washington, D.C.
鈥淜ids spend six hours a day in school, and mental health is essential to learning. So schools that are very data-driven understand that in order for some kids to succeed, their mental health needs must be met,鈥 she said.
Nonetheless, schools vary greatly in the degree to which they are willing and able to accommodate mental health issues. 鈥淪ome are doing a lot and training teachers on how to recognize warning signs and talk to families. And others are doing very little to understand the needs of students and how to work with families,鈥 said Gruttadaro.
Sydney鈥檚 and Laney鈥檚 public schools were willing to make accommodations 鈥斕齜ut the girls鈥 struggles continued. So, Selena transferred both to a smaller charter school called High Point Academy.

Principal John Hurley stands in front of the lockers at High Point Academy in Spartanburg, S.C. (Jenny Gold/KHN)
Principal John Hurley said he鈥檚 seen a growing number of students coming in with mental health diagnoses. The school wants to help — but teachers are not well prepared to handle these issues.
鈥淢y training in mental health was one chapter in a book that we covered in one day,鈥 recalled Hurley. Many teachers have experience with attention deficit hyperactivity disorder, he said, but they don鈥檛 have the tools to draw on when dealing with mood disorders.
鈥淏ecause we’re left in the dark, we have to fumble around to figure out what works best,鈥 explained Hurley. 鈥淪ometimes you can be wildly successful, and sometimes you can fail miserably and you could have done the exact same thing for two different students.鈥
That鈥檚 a pretty good description of what happened with Laney and Sydney.
Laney started High Point in the second grade and, by October, had already begun acting out.
鈥淎 lot of the times she didn鈥檛 like to write, so 鈥 she鈥檇 get frustrated and she might tear up her paper just depending on how she was feeling,鈥 said her second grade teacher, Erica Smith. Occasionally, Laney would also tear up other students鈥 assignments.
Selena was thrilled when Smith reached out and asked for advice. They started communicating almost daily, sharing tips about how best to reach Laney. They developed an individualized education plan, and Smith had a 鈥渟afe spot鈥 in the classroom where Laney could go to cool down until she could rejoin the class.

Teacher Erica Smith stands in front of the safe place in her classroom, an area where Laney went to cool down when she got frustrated. (Jenny Gold/KHN)
At the same time, Laney鈥檚 doctor adjusted her medications to help balance her mood. The solutions worked 鈥斕齪retty soon Laney was thriving. But Selena knew from experience that what works with one kid doesn鈥檛 always work with the other.
Selena helped get Sydney an individualized education plan that gave her extra time on tests, fewer assignments and two periods a day with听special education teacher Pam Smith, who has a background in mental health.
鈥淚 really feel we had everything we could have had that was available to us to meet her needs,鈥 said Pam Smith. 鈥淚 really feel that we went over and above sometimes.鈥
But nothing seemed to work. Sydney had trouble making friends and often shut down in class. She kept falling further behind.
鈥淚 started realizing it just wasn’t working. I can’t send my child somewhere every day and ignore the fact that it’s having a negative impact on her mental health,鈥 said Selena.
So in March, she pulled Sydney out of High Point and home-schooled her for the rest of the year.
She looked for a therapeutic school for Sydney to attend this year, but she couldn鈥檛 find one in her area. So this year, Sydney is attending an online school from home, while Selena works and Laney goes to the third grade at High Point. It鈥檚 not an ideal solution. Selena wanted Sydney to be in a brick and mortar school with other kids, but she said she鈥檚 had to learn to be flexible.
鈥淵ou think as a parent you’re supposed to just say, ‘Get up and go back to school’ the next day. And so you really have to sometimes stop and take stock of what鈥檚 going on and maybe change the path,鈥 she said.
As for Sydney, she said she was looking forward to studying from home. For the first time in years, she said she hadn鈥檛 been crying ahead of the first day of school.